Sue’s still knitting!


From now until 26 May, this is Sue’s daily schedule: 45 minutes yoga 8 hours working at the Nystagmus Network 1 hour walking her dogs Then carry on with her Two Point Six Challenge for the Nystagmus Network: knitting 26 mascots by 26 May. You can sponsor Sue here. To pre-order your nystagmus 2.6 challenge … Continue reading Sue’s still knitting!

Sue’s Two Point Six Challenge


Sunday 26 April 2020 was to have been the date of the London Marathon with runners raising £millions for UK charities. The Nystagmus Network’s runner, Adam, is still training to run in the postponed race in October. Meanwhile, the organisers have launched The Two Point Six Challenge to help save the UK’s charities by giving … Continue reading Sue’s Two Point Six Challenge

Join the Nystagmus Network for The 2.6 Challenge


Calling all nystagmus heroes … You, your family and friends are warmly invited to take part in The 2.6 Challenge from Sunday 26 April to help to save the UK’s charities. The Covid-19 pandemic has had a devastating effect on charities, with the cancellation of 1,000s of events and the loss of £billions in fundraising … Continue reading Join the Nystagmus Network for The 2.6 Challenge

Nystagmus Awareness Day 2020


We may all be staying at home, but we can still mark national and international Nystagmus Awareness Day. Here are just some of the ways you can get involved. How amazing are you? In the run up to Nystagmus Awareness Day 2020, we are once again asking you to share your amazing nystagmus success stories. Not only … Continue reading Nystagmus Awareness Day 2020

Lockdown fundraisers


Lockdown doesn’t stop us! Don’t let it stop you! We’re still here supporting the 1 in 1,000 people who have congenital or acquired nystagmus, by phone, email and on social media, but we do need your support now more than ever before to carry on. Release your inner fundraiser during lockdown With marathons, 10k runs, … Continue reading Lockdown fundraisers

Go hard and go straight home!


Make the most of your time outdoors (or inside!) with one of these fabulous fundraising challenges. choose your challenge sign yourself up set up your Justgiving page for sponsorship Choose from: Climb Everest – A 12 week challenge perfect for isolation. Complete a climb equivalent to Mount Everest (8,848m) either out and about on your daily exercise, climbing the … Continue reading Go hard and go straight home!

Join our virtual quiz night


This Saturday at 7pm Thank you to everyone who took part in the very first Nystagmus Network virtual quiz night last week. There may have been a few technical hitches, but it was certainly fun, got us all together and was just a little bit competitive! Congratulations to Sara, Nick and Rogier for walking away … Continue reading Join our virtual quiz night

Do you play our lottery?


Sign up for the Nystagmus Network Lottery and you’ll be in with the chance to win £25,000 for just £1 per week. There are lots of smaller weekly prizes, too. All profits, after prizes have been paid, come directly to the Nystagmus Network. This means we can continue our important work providing support and information, … Continue reading Do you play our lottery?

Please support Adam


Please sponsor Adam. He’s standing by to run the postponed London Marathon for the Nystagmus Network, as soon as restrictions are lifted.Adam is running the London Marathon this year, for his daughter, Florence and for all of us. Adam says: “I am honoured to be running the 2020 London Marathon on behalf of the Nystagmus … Continue reading Please support Adam