How are you getting on with shopping for food? What are your experiences of queues, social distancing, assistance available in store? Have you managed to secure online delivery slots? The … Continue reading Your food shopping experience
Category: Living with nystagmus
Does nystagmus or ocular albinism affect my immunity?
Lots of you are asking us this question and some of you have received notification letters from the government. We asked for expert clinical advice and received the following statement: … Continue reading Does nystagmus or ocular albinism affect my immunity?
A round up of online learning
The Nystagmus Network has put together a handy list of tried and tested online learning resources for parents and carers. It’s a list that’s growing day by day. If you’d … Continue reading A round up of online learning
Parents of adolescents with nystagmus: research participation opportunity
Ifigeneia Manitsa BEd, MSc, AFHEA (pictured) is a Psychology Researcher at Kingston University London. Her research is about the social and academic inclusion of adolescents with and without visual impairments. Ifigeneia has … Continue reading Parents of adolescents with nystagmus: research participation opportunity
Julia’s musical adventures
A guest post. A couple of years ago, I wrote a piece about being a parent with nystagmus of a child without. That child is now old enough to tell … Continue reading Julia’s musical adventures
Our new Facebook groups
The Nystagmus Network has launched 3 brand new official Facebook groups this week to help members of the nystagmus community come together to share their experiences, their problems and their … Continue reading Our new Facebook groups
Nystagmus researchers need your help
Common misconceptions about nystagmus A team of nystagmus researchers in the UK have recently shown that there is significant variation in the way people with nystagmus are supported and given … Continue reading Nystagmus researchers need your help
Fight for Sight survey on eye conditions and sight loss
Fight for Sight needs your help as part of a ground-breaking survey into the experience of living with sight loss or an eye condition. By taking part in the survey … Continue reading Fight for Sight survey on eye conditions and sight loss
Are you going to LookFest 2020?
LookFest is an accessible family festival outdoors and under canvas for families where there are children and young people with impaired vision.After the huge success of LookFest 19, they’re doing … Continue reading Are you going to LookFest 2020?
Reading an optician’s prescription
Although glasses cannot stop nystagmus they can correct refractive errors, such as long or short sight and astigmatism, to make the sight as clear as it can be. Do you … Continue reading Reading an optician’s prescription