Charities supporting people living with vision impairments, including the Nystagmus Network and the Albinism Fellowship UK, have signed an open letter from B4 International Blind Sports, outlining concerns about discrimination … Continue reading Discrimination against B4 athletes within International Blind Sport
Following transmission of the Nystagmus Network’s Radio 4 appeal, presented by Richard Osman, the charity has received universally positive feedback on the clarity of the broadcast’s message. One listener, in … Continue reading BBC charity appeal raises £8,000
In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both … Continue reading Nystagmus in lockdown
A guest post from Rosaleen Dempsey, RNIB Hi there I am from the children’s services in RNIB. Wonder if you would mind sharing a survey for families about the impact … Continue reading The impact of COVID-19 on visually impaired children
Our next webinar is all about going to a high street optician’s when you have nystagmus. Tuesday 12 May at 3pm You have had an eye test … what now … Continue reading Let’s go for an eye test!
In the run up to Nystagmus Awareness Day on 20 June 2020, we are once again asking you to share your amazing nystagmus success stories. Not only do these stories … Continue reading How amazing are you?
How are you getting on with shopping for food? What are your experiences of queues, social distancing, assistance available in store? Have you managed to secure online delivery slots? The … Continue reading Your food shopping experience
Lots of you are asking us this question and some of you have received notification letters from the government. We asked for expert clinical advice and received the following statement: … Continue reading Does nystagmus or ocular albinism affect my immunity?
The Nystagmus Network has put together a handy list of tried and tested online learning resources for parents and carers. It’s a list that’s growing day by day. If you’d … Continue reading A round up of online learning
Ifigeneia Manitsa BEd, MSc, AFHEA (pictured) is a Psychology Researcher at Kingston University London. Her research is about the social and academic inclusion of adolescents with and without visual impairments. Ifigeneia has … Continue reading Parents of adolescents with nystagmus: research participation opportunity
