This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Mike is a professional benefits expert who also … Continue reading #YouMadeItHappen – Mike
Category: Living with nystagmus
#YouMadeItHappen – Patsy
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Patsy is one of our newest volunteers. It’s … Continue reading #YouMadeItHappen – Patsy
Can I tell you about Nystagmus?
Nadine Neckles wrote the book ‘Can I tell you about Nystagmus?’ so that her young daughter, who has nystagmus, could live in a world more nystagmus aware. ‘Can I tell … Continue reading Can I tell you about Nystagmus?
Publication update
Thanks go to Mike Hughes, our volunteer benefits adviser and all round expert on everything to do with benefits and nystagmus. Mike has updated his booklet on DLA, PIP and … Continue reading Publication update
Open Day 2019 – the highlights
Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys … Continue reading Open Day 2019 – the highlights
Jeans for Nystagmus Genes: Delilah’s story
Delilah’s story: Delilah is helping to raise awareness of children’s genetic disorders with the UK children’s charity Genetic Disorders UK and their annual fundraising day, Jeans for Genes Day. This … Continue reading Jeans for Nystagmus Genes: Delilah’s story
A survey on glaucoma and nystagmus
You can support the University of Cardiff team to develop new diagnostic testing for people with nystagmus by taking their survey today. “The Research Unit for Nystagmus at Cardiff University … Continue reading A survey on glaucoma and nystagmus
Going to uni with nystagmus
Today’s guest post comes from Ella, author of the blog, Life of Ella. Ella is a First Class Honours graduate and a civil servant. She also happens to have nystagmus. … Continue reading Going to uni with nystagmus
Manchester meet up
The next meeting of our new North West nystagmus network will take place on Saturday 7 September in central Manchester, 10am to 12 noon. Nystagmus Network trustee, Marie Turnbull will … Continue reading Manchester meet up
Nystagmus and driving by Sophie
Please download our guide to Nystagmus and Driving here This guest post is from blogger, Sophie who shares her experience of living, laughing and loving with nystagmus in her blog … Continue reading Nystagmus and driving by Sophie