Impact of the COVID-19 pandemic on individuals with nystagmusand an exploration of public assumptions about the condition: an electronic questionnaire study The study explored the self-reported impact of the COVID-19 … Continue reading Perceptions of nystagmus and the impact of the Covid-19 pandemic
Nystagmus has been reported in up to 30% of people with Down Syndrome (DS), and yet is still not well understood. This study, by a team at Moorfields Eye Hospital, … Continue reading Nystagmus in Down Syndrome – a Retrospective Notes Review
The Nystagmus Network is a little charity with very big ideas. Do you want to be part of our exciting journey? If you have the skills and time to give … Continue reading Volunteer for us!
A guest post After my first proper job following university, I decided to ‘come out’ about my disability and support needs. I was worried this might make me stand out … Continue reading Nystagmus awareness at work
In 2021 the Nystagmus Network supported 591 people to come to terms with nystagmus, to find the support and information they needed. We’re even busier in 2022, as more and … Continue reading It’s so nice to be appreciated
Whilst the trustees oversee strategy and guide the direction of the charity, overall management and day-to-day operations are in the capable hands of our small dedicated staff team. Hanni is … Continue reading Hanni’s nystagmus story
Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story or … Continue reading Tim Hands – living with nystagmus
Learning to live with nystagmus, finding our way in the world and developing independence creates a range of challenges as we move through the stages of life. Whether we’re talking … Continue reading Living with nystagmus through a global pandemic
Guest post by Ana Semrov, UCL GOS Institute of Child Health We are looking for volunteers to take part in our study called: What shapes quality of life of visually … Continue reading What shapes quality of life of visually impaired children and young people?
The little girl in the picture has nystagmus. She is enjoying some drawing at a Nystagmus Network event some years ago. At the time she had just started school and … Continue reading Nystagmus isn’t catching – tell your friends!
