Learning to live with nystagmus, finding our way in the world and developing independence creates a range of challenges as we move through the stages of life. Whether we’re talking … Continue reading Living with nystagmus through a global pandemic
Category: Living with nystagmus
What shapes quality of life of visually impaired children and young people?
Guest post by Ana Semrov, UCL GOS Institute of Child Health We are looking for volunteers to take part in our study called: What shapes quality of life of visually … Continue reading What shapes quality of life of visually impaired children and young people?
Nystagmus isn’t catching – tell your friends!
The little girl in the picture has nystagmus. She is enjoying some drawing at a Nystagmus Network event some years ago. At the time she had just started school and … Continue reading Nystagmus isn’t catching – tell your friends!
People’s perceptions of nystagmus and the impact of Covid-19
In November 2020, the Nystagmus Network shared news of a new research survey into people’s perceptions of nystagmus. The results have now been published. The responses to the survey show … Continue reading People’s perceptions of nystagmus and the impact of Covid-19
Joel’s nystagmus story
For Nystagmus Awareness Day 2022 we are delighted to share Joel’s nystagmus story, in his own words: What is nystagmus? Not many people know what nystagmus is. The best way … Continue reading Joel’s nystagmus story
Join us for the big lunch
As part of the long weekend 2-5 June, to celebrate the Platinum Jubilee of Her Majesty the Queen, the Nystagmus Network is inviting members of the nystagmus community to join … Continue reading Join us for the big lunch
Nystagmus affects quality of life of children and their parents, confirms new research
A team at the Eye Hospital and School of Ophthalmology and Optometry at Wenzhou Medical University in China have recently published their research on the effects of childhood cataract surgery in … Continue reading Nystagmus affects quality of life of children and their parents, confirms new research
BlindAmbition takes over the Working Age Forum
BlindAmbition is pleased to announce that it will be taking over the running of the Working Age Forum (WAF) for Visually Impaired People endorsed by the RNIB. The forum is … Continue reading BlindAmbition takes over the Working Age Forum
Care givers survey
Participants needed for research into the effects of the pandemic on those caring for and supporting people living with a visual impairment The Division of Optometry and Visual Sciences, School … Continue reading Care givers survey
A new guide to nystagmus and benefits
From our monthly virtual support networks to our free benefits advice, the Nystagmus Network is always here for you. As we emerge from the pandemic, we’re all feeling the financial pressure of increasing … Continue reading A new guide to nystagmus and benefits