Living with nystagmus – Page 6

A picture of Sherifa wearing a white long sleeve shirt, baby blue trousers, black large framed glasses, black curly hair and black sandals. Standing on a bridge looking towards a flowing river.

Sherifa’s nystagmus story

Sherifa has shared her nystagmus story to help raise awareness of the condition and its impact this Nystagmus Awareness Day. You can share your story here This is Sherifa’s story … Continue reading Sherifa’s nystagmus story

Andy’s nystagmus story

We;re inviting everyone to share their nystagmus story in their preferred medium this Nystagmus Awareness Day. Andy has chosen to make a video. You can share your story here This … Continue reading Andy’s nystagmus story

A crowded street scene, with lots of blurring so that individual faces cannot be seen clearly.

Support for visually impaired jobseekers

RNIB and BlindAmbition present a 16-week series of free weekly webinars to support visually impaired job seekers achieve the next stage in their career: finding a new role, entering employment, … Continue reading Support for visually impaired jobseekers

A poster for The Great Winter Get Together, #PlacesForConnection, 16-29 January 2023, with graphic images of a cuppa, buildings and a screen.

A winter warmer for darker days

We’re taking part in the #TheGreatGetTogether – please join us We are hosting two online get togethers this month. For people living with Acquired Nystagmus our online get together takes … Continue reading A winter warmer for darker days

Carol’s nystagmus story

We know you will enjoy reading about Carol’s experiences. She thinks of her nystagmus as a quirky trait that doesn’t define who she is and hopes you will find her … Continue reading Carol’s nystagmus story

A row of people stand outside Specsavers wearing Nystagmus Network T-shirts.

Leicester optician puts nystagmus in Focus

Having nystagmus hasn’t stopped Leicester’s Khalil Musani from forging a career in optics and helping others look after their eyes When Khalil secured a Saturday job at a Leicester opticians … Continue reading Leicester optician puts nystagmus in Focus

The impact of glare on reading

Researchers are investigating the impact of glare on young children with albinism and nystagmus to help ease important day-to-day tasks like reading. Jointly funded by Nystagmus Network and Fight for … Continue reading The impact of glare on reading

Perceptions of nystagmus and the impact of the Covid-19 pandemic

Impact of the COVID-19 pandemic on individuals with nystagmusand an exploration of public assumptions about the condition: an electronic questionnaire study The study explored the self-reported impact of the COVID-19 … Continue reading Perceptions of nystagmus and the impact of the Covid-19 pandemic

Nystagmus in Down Syndrome – a Retrospective Notes Review

Nystagmus has been reported in up to 30% of people with Down Syndrome (DS), and yet is still not well understood. This study, by a team at Moorfields Eye Hospital, … Continue reading Nystagmus in Down Syndrome – a Retrospective Notes Review

Hands raised in the air in silhouette against a blue sky.

Volunteer for us!

The Nystagmus Network is a little charity with very big ideas. Do you want to be part of our exciting journey? If you have the skills and time to give … Continue reading Volunteer for us!