The Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend our periodic Parent Power webinars. Each … Continue reading More Parent Power coming soon
Category: Living with nystagmus
Our weekend away
Each year the Landmark Trust offers a limited number of stays in their historic properties to small charities. The scheme is called 50 for free. Late last year the Nystagmus … Continue reading Our weekend away
What’s your nystagmus research question?
The Nystagmus Network has been investing in research since the 1990s. Nystagmus academics, clinicians and researchers in Cardiff, Leicester, London, Plymouth, Sheffield and Southampton continue to focus on causes, effects, … Continue reading What’s your nystagmus research question?
Have a go at VI sport
Sports, especially those involving fast moving balls, can be a challenge if you have nystagmus, but British Blind Sport offer lots of opportunities for you to have a go and … Continue reading Have a go at VI sport
What do we see?
In answer to the question ‘What does a visually impaired child see?’ the Thomas Pocklington Trust has produced a new video simulating the 5 most commonly seen forms of vision … Continue reading What do we see?
Register now for Open Day 2021
Nystagmus Network Open Day – Saturday 25 September We promise a packed programme of presentations, inspirational speakers, research updates, videos, workshops, forums, competitions and so much more – all available wherever … Continue reading Register now for Open Day 2021
Do you use your local offer?
Since 2014 all UK local authorities are required to put information about services for families with disabled children in a special web page called the Local Offer. Have you found … Continue reading Do you use your local offer?
Notes from the February Forum for adults living with Acquired Nystagmus and Oscillopsia
Thank you to everyone who joined us for the Nystagmus Network February Forum for Adults living with Acquired Nystagmus and Oscillopsia. Patsy’s story, a case study of AN and Oscillopsia … Continue reading Notes from the February Forum for adults living with Acquired Nystagmus and Oscillopsia
Notes from the February Forum for adults with congenital nystagmus
Thank you to everyone who joined us for the Nystagmus Network February Forum for Adults living with Congenital Nystagmus. ECLOs Ian, our Information Support Officer made sure that everyone knew … Continue reading Notes from the February Forum for adults with congenital nystagmus
Notes from the January forum for adults living with CN
It was so wonderful to see and hear people exchanging experiences and tips on Tuesday evening, 26 January (morning for those who joined us from New Zealand!). Here are just … Continue reading Notes from the January forum for adults living with CN