People sitting together at a table enjoying breakfast.

Our ‘wonderful’ Landmark Trust weekend

Members of the Nystagmus Network acquired nystagmus and oscillopsia forum recently enjoyed a weekend away courtesy of the Landmark Trust ’50 for free’ programme.

The group stayed at the splendid Georgian property, Elton House, in the centre of Bath, where we enjoyed all the comforts of modern living and all the attractions of the city right on our doorstep.

A member of our group spoke for all of us when she said: “Our recent weekend in Bath was a wonderful experience and a chance for us to meet each other in person for the first time. It enabled people to be themselves without judgements being made about missed steps or where we sat in a restaurant. The group was such a success, you wouldn’t know we had only just met!”

Another group member said: “It was so lovely to meet you all in Bath and, whilst tiring for us sufferers, was a great opportunity to chat on a more personal level. We had a great connection and got on so well. I felt like we could see (and appreciate) our individual characters, despite the very troublesome nystagmus. Thank you so much to the Landmark Trust.”

The picture shows group members enjoying brunch together at a local deli

The logo of the Landmark Trust

Our Landmark weekend

This Friday to Monday Sue and members of the Nystagmus Network acquired nystagmus forum are spending time together in a beautiful, historic building, courtesy of the Landmark Trust. This is the first time everyone has met in person since they began getting to know each other online in March 2020. We look forward to getting better acquainted in relaxed and elegant surroundings.

Each year the Landmark Trust offers a limited number of stays in their historic properties to small charities. The scheme is called 50 for free.

The Nystagmus Network set up monthly online forums for parents, adults who have congenital nystagmus and adults living with acquired nystagmus at the beginning of the pandemic. The forums have been very popular and continue to flourish with some lasting friendships made along the way. We like to think of them as friendly, informative and a little haven away from worries about the outside world.

If you would like to join one of our online get togethers, please contact us by email at [email protected].

The logo of the Landmark Trust

Our weekend away

Each year the Landmark Trust offers a limited number of stays in their historic properties to small charities. The scheme is called 50 for free.

Late last year the Nystagmus Network applied on behalf of members of our AN and Oscillopsia forum, thinking this would be a lovely chance for them to meet up in person and share quality time in a relaxed setting. Our bid was successful and we have been offered a lovely long weekend stay this March.

Eight people drawn from the forum will travel to their destination and enjoy getting to know each other in person in elegant surroundings.

The Nystagmus Network set up monthly online forums for parents, adults who have congenital nystagmus and adults living with acquired nystagmus in March 2020. The forums have been very popular and continue to flourish with some lasting friendships made along the way. We like to think of them as friendly, informative a little haven away from worries about the outside world.

If you would like to join one of our online get togethers, please contact us by email at [email protected].