Thank you to everyone who joined us for the Nystagmus Network February Forum for Adults living with Acquired Nystagmus and Oscillopsia. Patsy’s story, a case study of AN and Oscillopsia … Continue reading Notes from the February Forum for adults living with Acquired Nystagmus and Oscillopsia
Category: Living with nystagmus
Notes from the February Forum for adults with congenital nystagmus
Thank you to everyone who joined us for the Nystagmus Network February Forum for Adults living with Congenital Nystagmus. ECLOs Ian, our Information Support Officer made sure that everyone knew … Continue reading Notes from the February Forum for adults with congenital nystagmus
Notes from the January forum for adults living with CN
It was so wonderful to see and hear people exchanging experiences and tips on Tuesday evening, 26 January (morning for those who joined us from New Zealand!). Here are just … Continue reading Notes from the January forum for adults living with CN
Vision impairment and employment – a research project
Guest Post: Dr. Liz Ellis, VICTAR, University of Birmingham The Vision Impairment Centre for Teaching and Research (VICTAR) at the University of Birmingham is conducting research to understand more about … Continue reading Vision impairment and employment – a research project
Nystagmus does cause visual crowding – it’s official
It’s long been understood that people with nystagmus can struggle to pick out objects from an image or face in a crowd. That’s a phenomenon called visual crowding. But how … Continue reading Nystagmus does cause visual crowding – it’s official
Nystagmus Networking
With a most difficult year now thankfully behind us, the Nystagmus Network is here to support the nystagmus community in any way we can. Keeping you connected Virtual meet ups for … Continue reading Nystagmus Networking
Thank you, Zoe
It’s fitting that our final nystagmus hero of 2020 is someone who has been working tirelessly all year looking after some of our most vulnerable people. Zoe is a care … Continue reading Thank you, Zoe
Thank you, Mike
What can we say about Mike that hasn’t been said already? He endured so much for the nystagmus cause this year – including very wet feet, a constantly rumbling tummy … Continue reading Thank you, Mike
Thank you, Mervyn
Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who … Continue reading Thank you, Mervyn
Thank you, Julia
Living with the triple whammy of nystagmus, myopia and astigmatism, Julia is an accomplished musician. She also sings in choirs, which often happens in poorly lit churches. In her blog … Continue reading Thank you, Julia