Living with nystagmus – Page 10

Mike wears his Nystagmus Network T short and smiles for the camera

Thank you, Mike

What can we say about Mike that hasn’t been said already? He endured so much for the nystagmus cause this year – including very wet feet, a constantly rumbling tummy … Continue reading Thank you, Mike

Thank you, Mervyn

Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who … Continue reading Thank you, Mervyn

Julia and her young daughter smile for the camera. They are at the seaside and the child is holding a toy windmill.

Thank you, Julia

Living with the triple whammy of nystagmus, myopia and astigmatism, Julia is an accomplished musician. She also sings in choirs, which often happens in poorly lit churches. In her blog … Continue reading Thank you, Julia

Josh and his family smile for the camera.

Thank you, Josh

Josh can’t see rain – can you? Josh was born with nystagmus and ocular albinism, but he hasn’t let that hold him back. Josh has been a primary school teacher … Continue reading Thank you, Josh

A woman holds her head in her hands and appears o be in some discomfort.

Living with Acquired Nystagmus and Oscillopsia?

The Nystagmus Network runs a virtual support group where people living with Acquired Nystagmus and/or Oscillopsia chat together on email and on zoom to share their experiences and try to find answers together. … Continue reading Living with Acquired Nystagmus and Oscillopsia?

New nystagmus research

We are excited to announce the start of a new research study into nystagmus The aim of the study is to gather evidence about people’s perceptions of nystagmus. The results … Continue reading New nystagmus research

Chris Harris sits behind a microphone and prepares to speak.

Do you have Acquired Nystagmus or Oscillopsia?

We need you! The Nystagmus Network is supporting Professor Chris Harris and his team at the Royal Eye Hospital, Plymouth to investigate further Acquired Nystagmus and Oscillopsia. If you have … Continue reading Do you have Acquired Nystagmus or Oscillopsia?

Ifigeneia Manitsa is a Psychology Researcher and Assistant Lecturer at Kingston University. She is currently conducting the last two studies of her PhD which is focused on the academic and social inclusion … Continue reading Research participation opportunity for 12-14 year olds

Category: Living with nystagmus