Eye Research Priority Survey Your input is needed into a new survey designed to refresh the James Lind Alliance Sight Loss and Vision research priorities* that were first published in 2013. Despite … Continue reading Could you help shape the direction of eye research in the UK?
Your chance to influence the direction of UK nystagmus research NUKE is the Nystagmus UK Eye research group. Members are currently researchers, clinicians, academics and patient support groups, including, of … Continue reading Next steps for NUKE
What is the psychological impact on parents immediately following a child’s diagnosis of congenital sensory impairment? Rebecca Greenhalgh, Trainee Clinical Psychologist at Coventry University is leading a new research project, … Continue reading New research explores parental experience of their child’s diagnosis
Nystagmus Network trustees donated £17,000 to the paediatric fund of the University of Southampton’s Gift of Sight appeal last December thanks to the generosity of our fundraisers and supporters. Someone … Continue reading Nystagmus Network invests £17,000 in research
This August the Nystagmus Network was finally able to meet with and celebrate the incredible achievements of a true nystagmus superhero, Mike Larcombe. From December 2019 and for a total … Continue reading Meet me in Southampton
Researchers are investigating the impact of glare on young children with albinism and nystagmus to help ease important day-to-day tasks like reading. Jointly funded by Nystagmus Network and Fight for … Continue reading The impact of glare on reading
Guest post by Ana Semrov, PhD student and study researcher, Vision and Eyes research team at UCL Childhood visual impairment can have a significant impact on a person across their whole … Continue reading What shapes quality of life of visually impaired children and young people?
Impact of the COVID-19 pandemic on individuals with nystagmusand an exploration of public assumptions about the condition: an electronic questionnaire study The study explored the self-reported impact of the COVID-19 … Continue reading Perceptions of nystagmus and the impact of the Covid-19 pandemic
Leicester research team awarded prestigious prize from the Royal College of Ophthalmologists Image credit: Royal College of Ophthalmologists A team of specialist eye doctors at the University of Leicester have … Continue reading Congratulations, team Leicester
Nystagmus has been reported in up to 30% of people with Down Syndrome (DS), and yet is still not well understood. This study, by a team at Moorfields Eye Hospital, … Continue reading Nystagmus in Down Syndrome – a Retrospective Notes Review
