A close up of someone wearing eye test glasses and the words 'Funding visual impairment a landscape view'.

A new report highlights the need for more investment in sight research


Nystagmus Network’s Sue is proud to have played a small part in the work behind a new report, published by NPC today, into the lack of funding for visual impairment. … Continue reading A new report highlights the need for more investment in sight research

A person wearing a doctor's white coat is testing a patient's eyes using clinical equipment.

The Fight for Sight/Nystagmus Network Small Grant Award


We are delighted to announce that the Nystagmus Network has jointly awarded two new nystagmus research grant awards with our funding partners Fight for Sight. The two successful applicants are … Continue reading The Fight for Sight/Nystagmus Network Small Grant Award

A young person choses a book from a shelf.

Could you help shape the direction of eye research in the UK?


Eye Research Priority Survey Your input is needed into a new survey designed to refresh the James Lind Alliance Sight Loss and Vision research priorities* that were first published in 2013. Despite … Continue reading Could you help shape the direction of eye research in the UK?

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New research explores parental experience of their child’s diagnosis


What is the psychological impact on parents immediately following a child’s diagnosis of congenital sensory impairment? Rebecca Greenhalgh, Trainee Clinical Psychologist at Coventry University is leading a new research project, … Continue reading New research explores parental experience of their child’s diagnosis

Jay Self and Mike Larcombe at University Hospital Southampton. Mike wears a Nystagmus Network T-shirt and his Te Araroa medal.

Nystagmus Network invests £17,000 in research


Nystagmus Network trustees donated £17,000 to the paediatric fund of the University of Southampton’s Gift of Sight appeal last December thanks to the generosity of our fundraisers and supporters. Someone … Continue reading Nystagmus Network invests £17,000 in research

Mike Larcombe with Jay, Helena, Harsh and Sue at University Hospital Southampton.

Meet me in Southampton


This August the Nystagmus Network was finally able to meet with and celebrate the incredible achievements of a true nystagmus superhero, Mike Larcombe. From December 2019 and for a total … Continue reading Meet me in Southampton

Child with albinism.

The impact of glare on reading


Researchers are investigating the impact of glare on young children with albinism and nystagmus to help ease important day-to-day tasks like reading. Jointly funded by Nystagmus Network and Fight for … Continue reading The impact of glare on reading

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What shapes quality of life of visually impaired children and young people?


Guest post by Ana Semrov, PhD student and study researcher, Vision and Eyes research team at UCL Childhood visual impairment can have a significant impact on a person across their whole … Continue reading What shapes quality of life of visually impaired children and young people?