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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

A research focus for Open Day


This year’s Open Day has a huge emphasis on nystagmus research. Throughout the day delegates will be able to visit our Research Hub and speak with researchers and clinicians from … Continue reading A research focus for Open Day

Posted on September 27, 2018Author Sue RickettsCategories Charity highlights, Open Day 2018, research

Are you signed up?


Lots of Nystagmus Network supporters are raising money for the charity by shopping online with @easyuk. Every time you shop online, the retailer gives us a free donation. All these … Continue reading Are you signed up?

Posted on September 26, 2018Author Sue RickettsCategories FundraisingTags Easyfundraising

A new video on nystagmus


Published today as part of National Eye Health Week, a new YouTube video by Emily Davison, also known online as the Fashioneyesta, tells what nystagmus is and how it affects … Continue reading A new video on nystagmus

Posted on September 25, 2018Author Sue RickettsCategories Guest posts, Information and Support, Living with nystagmusTags Emily Davison, Fasioneyesta, nystagmus, video

Yorkshire 3 Peaks – completed!


Steph and her team completed the Yorkshire 3 Peaks Challenge on Saturday in 11 hours 45 minutes. Well done, team! They were doing this in honour of Steph’s young son, … Continue reading Yorkshire 3 Peaks – completed!

Posted on September 24, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags bucket list, nystagmus, Yorkshire 3 Peaks Challenge

They did it!


Although the Team Nystagmus Network / Moorfields Eye Charity fundraising abseil at the ArcelorMittal Orbit couldn’t go ahead on Sunday morning as planned due to heavy rain and high winds, … Continue reading They did it!

Posted on September 24, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags abseil, Moorfields Eye Hospital, nystagmus research

Sign up to the Nystagmus Network lottery


Did you know that for just £1 per week you could be in with a chance to win £25,000? You could, if you signed up to the Nystagmus Network lottery. … Continue reading Sign up to the Nystagmus Network lottery

Posted on September 24, 2018September 24, 2018Author Sue RickettsCategories FundraisingTags Lottery, nystagmus network

The abseil is this weekend!


This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal … Continue reading The abseil is this weekend!

Posted on September 20, 2018Author Sue RickettsCategories Charity highlights, Fundraising, researchTags abseil, Moorfields Eye Hospital, nystagmus, research, University College London

Little Amber – there to help


Nystagmus Network’s Rachel, writes: Here at the Nystagmus Network we’re always looking for new opportunities for our members. Recently we came across a charity awarding grants to blind and partially … Continue reading Little Amber – there to help

Posted on September 19, 2018March 22, 2024Author Sue RickettsCategories Information and Support, Living with nystagmus, Parent storiesTags Amber Trust, music

Publication update


With thanks to Mike Hughes, our volunteer benefits adviser, who has today supplied a newly updated edition of his booklet on nystagmus and benefits. The new version, taking into account … Continue reading Publication update

Posted on September 19, 2018Author Sue RickettsCategories Events, Information and SupportTags benefits, DLA, PIP

Well done, Bronagh and Susan!


Last Sunday Bronagh and Susan completed the Spartan Scotland 2018 challenge for the Nystagmus Network. That’s a lot of running, a lot of obstacles and an awful lot of mud. … Continue reading Well done, Bronagh and Susan!

Posted on September 18, 2018Author Sue RickettsCategories Fundraising, Thank yousTags Spartan Scotland challenge

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