Actor, singer, musician and children’s author, Gerard McDermott will present the BBC Radio 4 charity appeal on behalf of the Nystagmus Network on Sunday 11 August. Watch and hear Gerard … Continue reading Gerard presents the Nystagmus Network our BBC Radio 4 charity appeal
A team of researchers led by Dr Heiko Rust, based at the University of Basel Hospital in Switzerland, are inviting members of the UK nystagmus community to take part in … Continue reading Take part in research on disorientation
The Nystagmus Network is committed to supporting groundbreaking research, from understanding the root causes of nystagmus through to managing and treating the condition. Recently our trustees, Paul Rose and Harshal … Continue reading Nystagmus Network visits pioneering research in London
When your child becomes a parent your relationship with them moves into an exciting new phase. Alongside that, you have an entirely new little person to get to know. It’s … Continue reading Our Facebook group for grandparents
On New Year’s Eve 1984 my parents went on their first date. And I guess that’s where my nystagmus story begins. My Dad had Nystagmus from birth but it wasn’t … Continue reading Claire’s 1984 Story
The Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online on Wednesday 10 July at 7pm. Please note that … Continue reading New date for the Nystagmus Network AGM 2023
My name is Trish (Patricia). I was born in 1956. Nystagmus was virtually unknown back then. My parents struggled to keep me in mainstream school and I faced many challenges … Continue reading Patricia’s Story
I was diagnosed with nystagmus almost from birth and I had glasses from around 18 months. I attended regular state school and struggled to see, however my parents were keen … Continue reading Glen’s Story
This is Flynn. Flynn was diagnosed with congenital nystagmus at the age of 2. When Flynn was about 6 months old, our health visitor noticed something was not quite right. … Continue reading Flynn’s Story
I grew up knowing I was short-sighted but, other than that, I had a pretty normal childhood in a family with five brothers and two sisters. In school, I sat at the … Continue reading Jan’s 1984 Story
