Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s … Continue reading Marsha’s message for Nystagmus Awareness Day 2024
Tag: nystagmus network
It’s nearly Nystagmus Awareness Day 2024
Make sure you’re ready to take part in Nystagmus Awareness Day 2024 on 20 June. Your FREE digital programme has all the information and links you need. There’s the great … Continue reading It’s nearly Nystagmus Awareness Day 2024
Calling people living with nystagmus in Scotland who are over 65
Are you an older adult living with visual impairment? We are a team of researchers at the University of Strathclyde who want to explore your experiences of travelling from home … Continue reading Calling people living with nystagmus in Scotland who are over 65
Take part in research at Charing Cross Hospital, London
Sarah Hösli, Honorary Senior Research Fellow with the Brain and Vestibular Group at Imperial College London, part of Dr Barry Seemungal’s team, invites study participants. She writes: “We are currently … Continue reading Take part in research at Charing Cross Hospital, London
Harshal’s 1984 story
The year was 1984 and in a little corner of Middlesex, a baby boy was just starting to explore the world, especially a local park that our family home shared … Continue reading Harshal’s 1984 story
John’s 1984 Story – The world is my chauffeur
We belong to many tribes, often overlapping, during our lives. The story of my nystagmus tribe starts in 1984. In particular, the day I first met others with nystagmus and … Continue reading John’s 1984 Story – The world is my chauffeur
Mike’s Southampton family send off
As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off
Kathryn’s 1984 story
In September 1984 I started my training as an orthoptist at Moorfields Eye Hospital School of Orthoptics. Back then orthoptic training was a three-year diploma course for which students received … Continue reading Kathryn’s 1984 story
Booking is now open for our London event
Our next big nystagmus meet up takes place in London on Saturday 13 July, from 11am to 4pm. This is your chance to hear all the latest nystagmus news, learn … Continue reading Booking is now open for our London event
Walk with us
On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. Spending time outside with … Continue reading Walk with us