In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both … Continue reading Nystagmus in lockdown
Author: Sue Ricketts
Nystagmus Awareness Day 20 June 20
Nystagmus Awareness Day – 20 June 2020 It’s national and international Nystagmus Awareness Day on Saturday 20 June 2020. We may all be staying at home this year, but we … Continue reading Nystagmus Awareness Day 20 June 20
Welcome boost for new mums and dads of young children with albinism
Guest post from Roselle Potts, Albinism Fellowship For more information, please contact Roselle Potts, email: [email protected] While the birth of a new baby is an occasion to celebrate, parents of … Continue reading Welcome boost for new mums and dads of young children with albinism
Nystagmus is … a guide for adults
A fabulous new publication, Nystagmus is … a guide for adults, is now available FREE from our online shop. The booklet is inspired by the wonderful Roger (pictured), who first contacted us … Continue reading Nystagmus is … a guide for adults
Sold out
Thank you to everyone who sponsored Sue to knit 26 nystagmus mascots wearing running kit for her recent 2.6 challenge. Thank you, too, to everyone who ordered a mascot. All … Continue reading Sold out
A YouGov nystagmus awareness survey
The Nystagmus Network commissioned a YouGov survey in May 2020, ahead of Nystagmus Awareness Day on 20 June, to see how aware the UK population is of nystagmus. The survey … Continue reading A YouGov nystagmus awareness survey
Boost it for June
WALK, JOG, or RUN Anywhere – Anytime… THROUGHOUT JUNE From 50 km up to 500 km… You choose Your challenge Sign Up Now… With relaxation of the restrictions on travel and exercise, June … Continue reading Boost it for June
The Nystagmus Network receives £8,000 from the National Lottery to increase our support services
The Nystagmus Network is delighted to have been awarded just over £8,000 in National Lottery funding to underpin its work supporting adults with nystagmus. The charity will use the funding … Continue reading The Nystagmus Network receives £8,000 from the National Lottery to increase our support services
Sue’s 2.6 challenge – complete!
Sue has finished her 2.6 challenge ahead of schedule. She has knitted 2.6 special edition Nystagmus Network mascots in less than 26 days! Each mascot wears running kit to signify … Continue reading Sue’s 2.6 challenge – complete!
Nystagmus Network launches webinar series for clinicians
Nystagmus Network launches online CET webinars for eye-care professionals The Nystagmus Network charity was founded in 1984 to support patients living with the condition. They currently have 500 members but … Continue reading Nystagmus Network launches webinar series for clinicians