Ian is sharing his thoughts and experiences as his son undergoes Anderson Kestenbaum surgery this summer to address the head turn associated with his null point. In this post he … Continue reading Guest post – Harry’s null point surgery
Author: Sue Ricketts
Do you flush your contact lenses down the loo?
With so much talk at the moment about plastic pollution, here’s one small way in which the vision impaired community can help. We can stop flushing our used contact lenses … Continue reading Do you flush your contact lenses down the loo?
Guest post – questions for Harry’s consultant
Harry and his parents had many, many questions before finally deciding to go ahead with null point surgery. Here are just some of the questions the family asked, with the answers … Continue reading Guest post – questions for Harry’s consultant
VI skiing this Bank Holiday weekend!
We’re delighted to confirm another opportunity to ski with the Nystagmus Network and the Outspan Rebels VI ski team. On Sunday 26th August we will be running a two-hour ski lesson … Continue reading VI skiing this Bank Holiday weekend!
Guest post – Harry’s null point surgery decision
15 year old Harry has undergone the Anderson Kestenbaum procedure this summer. Parents often ask what null point surgery involves. Thorough consultation with the ophthalmologist and the surgical team are key. … Continue reading Guest post – Harry’s null point surgery decision
Research project could lead to cure for blindness
Moorfields consultant, Dr Marya Moosajee, is featured today in an Evening Standard article for her pioneering research, seeking to cure rare genetic causes of blindness. Read the article here.
Introducing Harry’s story
This is Harry. He’s 15 years old. He has nystagmus and, as you can probably tell from the photo, he also has a fairly marked head turn associated with his … Continue reading Introducing Harry’s story
Glen’s taking the abseil challenge. Could you?
Glen is a member of the Nystagmus Network and a true friend of the charity. We were privileged to meet him last year when he led a workshop at Open … Continue reading Glen’s taking the abseil challenge. Could you?
Claire’s taking the leap for nystagmus. Want to join her?
Introducing Claire, the next member of Team Nystagmus Network Abseil. Claire is a keen rock climber, so abseiling her way down the ArcelorMittal Orbit is going to be a walk … Continue reading Claire’s taking the leap for nystagmus. Want to join her?
An inspirational student
Ella is a third year student at Nottingham Trent University. She just happens to have nystagmus. She is full of advice and inspiration for other young people with nystagmus. Hear … Continue reading An inspirational student