Our Manchester Event

Manchester Royal Eye Hospital is holding a Nystagmus Awareness
afternoon filled with fun activities for children and young people, as well as
information for parents, carers and families of children with nystagmus.
Guests from the Nystagmus Network include the charity’s volunteer benefits adviser, Mike Hughes and trustee, Marie Turnbull who will be available for discussions and to provide information.
Staff from Henshaws will be present to offer support and demonstrate tools
and aids, and staff members from Manchester Royal Eye Hospital’s
optometry and orthoptic departments will also be on hand to talk about their services.

QAC Open Days for professionals

Queen Alexandra College

A National College for People with Disabilities

Information Days for Professionals

These events provide you with the opportunity to meet our staff and students and discover more about Queen Alexandra College.

FREE OF CHARGE

We welcome:

Connexions and Careers Advisors

DEAs, Work Coaches, Employment Advisors and Social Workers

Teachers and Learning Support Assistants

SENCOs

Sensory Support Teams

Local Education Authority Employees

Dates of forthcoming Information Days:

Tuesday 11th June 2019

Thursday 10th October 2019

Tuesday 26th November 2019

Your day at QAC will give you the opportunity to learn more about:

QAC’s 16-25 curriculum

advance2work – opening the doors to employment for people with disabilities

Independent living skills and the extended curriculum

Residential provision

Rehabilitation and travel training

An overview of assistive technology

Independence Plus – Supported Living

Information Days for Professionals

There is no charge to attend. A free lunch and refreshments will be provided by QAC. Times: 10am – 3pm.

Please book your place early as numbers are limited. Call 0121 428 5041 or email [email protected]

Queen Alexandra College is a national residential college providing further education and support into employment for people aged 16+.

The College offers individually tailored programmes to meet the needs of people with disabilities.

This information is available in Braille, large print or audio upon request.

Registered Charity No. 1065794

Registered in England No. 3387540

Queen Alexandra College

A National College for People with Disabilities

Court Oak Road Harborne Birmingham B17 9TG

Tel: 0121 428 5050 Fax: 0121 428 5048

Email: [email protected]

www.qac.ac.uk

Facebook: Queen Alexandra College (QAC) Official Site

Twitter: @QAC_Official

LinkedIn: Queen Alexandra College

Instagram: qac_official

YouTube: MyQAC

Let’s talk about driving at Open Day

Following the changes, earlier this year, to requirements around nystagmus and driving in the UK, we have asked a medical expert from the DVLA to come along to Open Day 2019 to answer all your questions.

Dr Gareth Rees will join us in Cardiff to lead an informal question and answer session, so whether you’re a new driver or have been driving for years, or you know a young person about to begin lessons, hear firsthand about the DVLA sight test and whether or not it is legal and safe to drive with nystagmus.

Until Open Day, please refer to our free to download publication ‘Nystagmus and Driving’ and the DVLA website for information and guidance.

Nystagmus Awareness Day event in Manchester

Manchester Royal Eye hospital are holding a Nystagmus Awareness Day afternoon filled with fun activities for children and young people and
information for parents, carers and families.

The event will take place on Wednesday 19 June. You can drop in from 14.00 to 17.00 in Clinic H.

Please register your interest for this event by contacting the ECLO on 0161 701 4258

Are you going to LOOKfest?

July 26-29 2019

Kentchurch, Herefordshire

Fun for all the family! From toddlers to teens, to the truly ancient, there is something for everyone!

Parent / Carer ticket: £55.00
Child ticket (3-18 yrs): £35.00 Under 2s go FREE!

Welcome to LOOKfest! the first ever VI-accessible summer festival for families with a visually impaired parent or child. Designed by VI people, for VI people!

LOOKfest! will take place on July 26-29, in the great outdoors and under canvas in rural Herefordshire.

This festival is run by LOOK UK, a charity that aims to empower young visually impaired (VI) people to thrive. LOOKfest! is a unique event, entirely created with VI people in mind.

On our beautiful and tranquil festival site, you are free to roam, join in with a host of activities or kick back and relax.

Feel the festival fever with fantastic performances from visually impaired
creatives and get involved in our sport, dance, crafts, creative music sessions
and more!

More details, including how to book, here.

ANUK conference 2019

Conference 2019

Learn about aniridia and related conditions from each other, and professionals in medical and related fields.

Find out how those affected by aniridia deal with it every day.

Contribute your experiences, ideas or skills to help others.

Expert presentations

Dr Simon Hayhoe from Bath University
Inclusive Technologies for VI people
Dr Ngozi Oluonye from Great Ormond Street Hospital
Developmental and health issues in VI children
Clive Matthews – Special Educational Needs advice
Life with aniridia by: 3 people living with aniridia

Plus

Stalls by organisations for visual impaired people
Annual General Meeting
Crèche
Lunch & refreshments
Social evening

When 1 June 2018 Cost: Adult £21 Child: £8.50

Where BVSC, 138, Digbeth, Birmingham, B5 6DR

Book www.aniridia.org.uk/conference – Deadline 19/5/19

Contact [email protected] 0778 731 8887

Merton info and family fun day

INFORMATION and FAMILY FUN DAY

Venue: MertonVision, The Guardian Centre,
67 Clarendon Road, Colliers Wood, London, SW19 2DX
Date: Saturday 29th June 2019
Time: 10.30am – 3.30pm
Travel: Nearest Tube: Colliers Wood on the Northern Line
Parking: There is a car park behind the Guardian Centre

Hosted by Guide Dog’s Children and Young People’s Services and MertonVision, we invite your support in coming to the launch of MertonVision’s Children and Young People’s Service.

Families of children and young people with a visual impairment and those with additional needs can meet and share ideas and chat with individuals from organisations who can offer information, advice and support.

What’s on offer during the day:
⦁ Children’s Activities including Art Workshop and more…
⦁ LOOK. Hear Charlotte Carson talk about the organisation and
their Mentoring Project involving young people
⦁ Guide Dog’s Children and Young People’s Services. Wendy Sainsbury will talk about the joy of setting up a Support Group
⦁ Stalls and exhibitions from a variety of organisations:
Guide Dog’s Specialist Children’s Services,
MAC’s
Royal Society for Blind Children
MertonVision
LOOK
Specific Eye Condition Groups
SEN and Publications and so much more

We look forward to you joining us – you won’t be disappointed!
Light refreshments will be available. You can just turn up on the day.
For more information or to book a place please contact:
Hazel Russell: [email protected]
Or Sally May: [email protected]

Want to be part of a world record attempt?

On the 3 June 2019, Orthoptics (School of Health Science) at The University of Liverpool will be celebrating World Orthoptics Day by attempting to break the current world record for the “Largest Human Image of an Eye”. The current record is 2,394 participants, all standing in a formation that from above resembles a human eye.

CLICK HERE to find out about how to take part.

Nystagmus Network research conference 2019.

Nystagmus research conference 2019

The Nystagmus Network will once again be hosting a UK nystagmus research conference in 2019.

Following the success of last year’s event, attended by research and clinical teams from the Universities of Cardiff, Sheffield, Plymouth and Southampton and from Moorfields Eye Hospital and Fight for Sight, the charity will be funding a further event with a view to bringing about ever closer collaboration between teams and seeking out new and collaborative ways to make rare resources stretch even further.

As testing and detection become ever more sophisticated, it is hoped that outcomes for babies born with nystagmus will continue to improve, with effective treatments, prevention and even cure moving closer. In addition, therapies and interventions for young people and adults with congenital and acquired nystagmus continue to be explored.

This year’s conference takes place at the University of Cardiff in September. Delegates from across the UK have been invited and the charity is delighted to announce that representation from Leicester, London, Plymouth, Southampton and, of course, Cardiff is already confirmed. Clinicians, researchers and academics will be joined by Research Manager at Fight for Sight, Neil Meemaduma and those Nystagmus Network trustees who sit on the charity’s research committee.

Research teams will also attend the Nystagmus Network Open Day in Cardiff on Saturday 28 September, where they will be available to speak with delegates about their work.

Look Fest

A guest post from Look UK

Welcome to Look Fest

July 26-29th 2019

Barton Farm, HR2 0BL, Kentchurch, Herefordshire