LookFest is an accessible family festival outdoors and under canvas for families where there are children and young people with impaired vision.After the huge success of LookFest 19, they’re doing … Continue reading Are you going to LookFest 2020?
LookFest is an accessible family festival outdoors and under canvas for families where there are children and young people with impaired vision.After the huge success of LookFest 19, they’re doing … Continue reading Are you going to LookFest 2020?
Follow Mike’s wiggly progress on his Facebook page, here and donate to his Nystagmus Network fundraising page, here. A sight-impaired young Englishman, Mike Larcombe, is preparing to trek across New … Continue reading Trekking through Middle Earth for nystagmus research
Nystagmus Network supporters are offered 10 free tickets to a new play with VI friendly performances Verity Kirk and Ingrid Schiller – 2 RADA graduates who set up their own … Continue reading Free theatre tickets
Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys … Continue reading Open Day 2019 – the highlights
The Nystagmus Network is today hosting the UK Nystagmus Research Workshop 2019 at the School of Optometry and Vision Sciences, Cardiff University. Delegates are joining us from the 6 UK … Continue reading UK Nystagmus Research Workshop
The next meeting of our new North West nystagmus network will take place on Saturday 7 September in central Manchester, 10am to 12 noon. Nystagmus Network trustee, Marie Turnbull will … Continue reading Manchester meet up
Huge thanks go to Aly for organising some very special Tai Chi sessions to help raise money for the Nystagmus Network. Tai Chi is amazing if you have nystagmus. It … Continue reading Special Tai Chi sessions for the Nystagmus Network
Any school can take part in Jeans for Genes Day. Pupils and staff can wear their jeans to school for a day and make a donation to charity. How to … Continue reading Jeans for nystagmus Genes
With thanks to our friends, the Outspan Rebels VI ski team, we’re offering you the chance, this August, to try out skiing for yourself at Snozone Milton Keynes. Menna Fitzpatrick … Continue reading Ski with Menna and Jen
GUEST POST, by Joanne Roughton-Arnold I am a member of the Nystagmus Network. I have ocular albinism with subsequent congenital nystagmus. I am a professional opera singer. Inspired by my … Continue reading formidAbility