Nystagmus heroes – Nystagmus Network

Gerard wearing a colourful shirt sitting in the BBC radio recording studio.

Another chance to hear our appeal

If you missed our BBC Radio 4 charity appeal broadcast on Sunday, there’s another chance to hear actor, singer, musician and children’s author, Gerard McDermott, who also happens to have … Continue reading Another chance to hear our appeal

Did you miss our appeal broadcast?

Actor, singer, musician and children’s author, Gerard McDermott, who also happens to have nystagmus, presented a BBC Radio 4 charity appeal on behalf of the Nystagmus Network on Sunday. If … Continue reading Did you miss our appeal broadcast?

Listen to our BBC Radio 4 charity appeal

Actor, singer, musician and children’s author, Gerard McDermott presents a BBC Radio 4 charity appeal on behalf of the Nystagmus Network today. Visit our BBC webpage here to listen The … Continue reading Listen to our BBC Radio 4 charity appeal

Gerard sits in a BBC radio recording studio, wearing a colourful shirt and smiling.

Gerard presents the Nystagmus Network our BBC Radio 4 charity appeal

Actor, singer, musician and children’s author, Gerard McDermott will present the BBC Radio 4 charity appeal on behalf of the Nystagmus Network on Sunday 11 August. Watch and hear Gerard … Continue reading Gerard presents the Nystagmus Network our BBC Radio 4 charity appeal

Marsha wears a floral top and a denim jacket. She is standing in a garden by a hedge.

Marsha’s message for Nystagmus Awareness Day 2024

Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s … Continue reading Marsha’s message for Nystagmus Awareness Day 2024

Mike and his nephew, both wearing WWE T-shirts, fist bump for the camera.

Mike’s Southampton family send off

As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off

Marsha and George stand together in a parliamentary council chamber.

George gives his oral evidence to the APPG

George has not yet completed his first month as an intern Information Support Officer with the Nystagmus Network. This week he was given a very special assignment, to give oral … Continue reading George gives his oral evidence to the APPG

John aged around 8 - a black and white photo.

John’s nystagmus story

This Nystagmus Awareness Day we’re asking people to share their story. You can share your story here John’s nystagmus story is a letter to his 9-year-old self To the best … Continue reading John’s nystagmus story

L-R Peter Greenwood, Marsha De Cordova MP (holding Nystagmus Network T-shirt, Harshal Kubavat.

Nystagmus Care Pathway published

Publication of Clinical Practice Points for managing nystagmus in childhood The Nystagmus Network has welcomed the publication of new guidance on the management of nystagmus in children by the Royal … Continue reading Nystagmus Care Pathway published

Richard speaks from a podium, wearing a white Nystagmus Network T-shirt.

Thank you, Richard

We are sorry to share the sad news that Richard Wilson, Chairman of the Nystagmus Network from 2011 to 2019, passed away over the Easter weekend. Richard’s contribution to the … Continue reading Thank you, Richard