Ifigeneia Manitsa is a Psychology researcher at Kingston University London and her research is about the social and academic inclusion of adolescents with and without visual impairments. She is currently conducting … Continue reading Calling parents of 12-14 year olds – research questionnaire
People with nystagmus are being invited to contribute to medical research by sharing their experiences of accessing a patient information pack, designed to support people living with the little known … Continue reading Research participation opportunity
The Nystagmus Network is delighted to announce that it has been granted a BBC Radio 4 charity appeal. The appeal will be presented by well known TV presenter, broadcaster and … Continue reading Richard Osman to voice Radio 4 appeal
A Guest Post by author and nystagmus Mum, Nadine Neckles So the world has turned on its head and what we once considered normal and safe has morphed into anxiety … Continue reading Homeschooling and nystagmus
In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both … Continue reading Nystagmus in lockdown
Nystagmus Awareness Day – 20 June 2020 It’s national and international Nystagmus Awareness Day on Saturday 20 June 2020. We may all be staying at home this year, but we … Continue reading Nystagmus Awareness Day 20 June 20
Guest post from Roselle Potts, Albinism Fellowship For more information, please contact Roselle Potts, email: chair@albinism.org.uk While the birth of a new baby is an occasion to celebrate, parents of … Continue reading Welcome boost for new mums and dads of young children with albinism
A fabulous new publication, Nystagmus is … a guide for adults, is now available FREE from our online shop. The booklet is inspired by the wonderful Roger (pictured), who first contacted us … Continue reading Nystagmus is … a guide for adults
Thank you to everyone who sponsored Sue to knit 26 nystagmus mascots wearing running kit for her recent 2.6 challenge. Thank you, too, to everyone who ordered a mascot. All … Continue reading Sold out
The Nystagmus Network commissioned a YouGov survey in May 2020, ahead of Nystagmus Awareness Day on 20 June, to see how aware the UK population is of nystagmus. The survey … Continue reading A YouGov nystagmus awareness survey
