nystagmus network – Nystagmus Network

Marsha chats with delegates at a Nystagmus Network event.

A Ruby Celebration at the House of Lords

Forty years ago this month a young mother sat at her kitchen table with a notepad and pen as her infant son slept. She’d just received the devastating news that … Continue reading A Ruby Celebration at the House of Lords

Members of the Nystagmus Network team wearing their tropical blue T-shirts hold up a banner.

Trustee vacancies

Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus community in all … Continue reading Trustee vacancies

Giving Tuesday

On Giving Tuesday 2024, the Nystagmus Network is offering you lots of opportunities to contribute to the work of the charity. On 3 December you can pledge your time and … Continue reading Giving Tuesday

A postacrd for the International Nystagmus Symposium 2023.

International Nystagmus Symposium 2024

The Nystagmus Network was once again proud to host the International Nystagmus Symposium online on Friday 25 October 2024. The schedule included presentations from seven eminent speakers including actor and … Continue reading International Nystagmus Symposium 2024

A child's drawing of Father Christmas with a candy cane and tree in the snow.

Nystagmus Network Christmas cards now available to order

Designed by children who have nystagmus and their siblings, these lovely cards are created for us by our kind friends at Salt Projects Ltd. 50p from the sale of each … Continue reading Nystagmus Network Christmas cards now available to order

A previous Christmas card design featuring a child's drawing of a tree and Santa and the words 'ho ho ho'.

Christmas card design competition

Children’s Christmas Card Design Competition 2024 with SALT Projects Ltd This competition is open to all children living in the UK with a visual impairment and their siblings. Do you … Continue reading Christmas card design competition

Gerard wearing a colourful shirt sitting in the BBC radio recording studio.

Another chance to hear our appeal

If you missed our BBC Radio 4 charity appeal broadcast on Sunday, there’s another chance to hear actor, singer, musician and children’s author, Gerard McDermott, who also happens to have … Continue reading Another chance to hear our appeal

Justine wears cap and gown and holds a bouquet of flowers. She stands in front of a Cambridge University building and smiles for the camera.

Justine wins the Richard Wilson Prize 2024

The Nystagmus Network is delighted to announce that Justine Chan, who is currently studying medicine at the University of Cambridge, has won the Richard Wilson Essay Prize 2024. The charity … Continue reading Justine wins the Richard Wilson Prize 2024

Did you miss our appeal broadcast?

Actor, singer, musician and children’s author, Gerard McDermott, who also happens to have nystagmus, presented a BBC Radio 4 charity appeal on behalf of the Nystagmus Network on Sunday. If … Continue reading Did you miss our appeal broadcast?

Listen to our BBC Radio 4 charity appeal

Actor, singer, musician and children’s author, Gerard McDermott presents a BBC Radio 4 charity appeal on behalf of the Nystagmus Network today. Visit our BBC webpage here to listen The … Continue reading Listen to our BBC Radio 4 charity appeal