Charlie loves football. He also loves his team. When they were short of money to pay for the under 7s new kit, Charlie had the brilliant idea of asking the … Continue reading Charlie’s Nystagmus Network football team
Tag: nystagmus
Tim Hands – living with nystagmus
Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story or … Continue reading Tim Hands – living with nystagmus
Living with nystagmus through a global pandemic
Learning to live with nystagmus, finding our way in the world and developing independence creates a range of challenges as we move through the stages of life. Whether we’re talking … Continue reading Living with nystagmus through a global pandemic
What shapes quality of life of visually impaired children and young people?
Guest post by Ana Semrov, UCL GOS Institute of Child Health We are looking for volunteers to take part in our study called: What shapes quality of life of visually … Continue reading What shapes quality of life of visually impaired children and young people?
Nystagmus isn’t catching – tell your friends!
The little girl in the picture has nystagmus. She is enjoying some drawing at a Nystagmus Network event some years ago. At the time she had just started school and … Continue reading Nystagmus isn’t catching – tell your friends!
Trustee vacancies
Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus community in all … Continue reading Trustee vacancies
People’s perceptions of nystagmus and the impact of Covid-19
In November 2020, the Nystagmus Network shared news of a new research survey into people’s perceptions of nystagmus. The results have now been published. The responses to the survey show … Continue reading People’s perceptions of nystagmus and the impact of Covid-19
Joel’s nystagmus story
For Nystagmus Awareness Day 2022 we are delighted to share Joel’s nystagmus story, in his own words: What is nystagmus? Not many people know what nystagmus is. The best way … Continue reading Joel’s nystagmus story
Join us for the big lunch
As part of the long weekend 2-5 June, to celebrate the Platinum Jubilee of Her Majesty the Queen, the Nystagmus Network is inviting members of the nystagmus community to join … Continue reading Join us for the big lunch
Nystagmus Network funds research equipment
At the end of 2021 the Nystagmus Network invited funding applications from UK nystagmus researchers to cover the cost of equipment needed to take their work forward. This week work … Continue reading Nystagmus Network funds research equipment