Children with nystagmus receive a grant from Jeans For Genes Day 2019 In July 2019, the Nystagmus Network is celebrating after hearing the news they will receive a grant from … Continue reading Jeans for nystagmus genes
Author: Sue Ricketts
Parent Power comes to Southampton
Parent Power, funded by the National Lottery Community Fund PLEASE NOTE – BOOKING IS NOW CLOSED The Nystagmus Network is now inviting parents and carers to attend the first of … Continue reading Parent Power comes to Southampton
In celebration of Irene
Today Nystagmus Network’s Sue and Sara are travelling to Leicester University to attend a day of celebrations. We shall be marking 20 years of ophthalmology in Leicester and, in particular, … Continue reading In celebration of Irene
Thank you, Shirley
The Nystagmus Network would like to say a huge thank you to Shirley Pennington, her family, friends and local Shropshire community. Shirley recently organised an auction of promises to raise … Continue reading Thank you, Shirley
We publish our annual review 2018
Trustees are pleased to announce that the 2018 Annual Review of the Nystagmus Network is now published on the Charities Commission website. Chairman of the charity, Richard Wilson OBE, says: … Continue reading We publish our annual review 2018
Thank you – you are amazing
As ‘wobbly week’ draws to a close for another year we just wanted to thank everyone for making Nystagmus Awareness day 2019 such a success. Thank you to our fundraisers, … Continue reading Thank you – you are amazing
How amazing is Aneeba?
Thank you for sending us all your nystagmus success stories. We just love to read them and we know they bring hope and inspiration to so many people. Today we … Continue reading How amazing is Aneeba?
How amazing is Ellen?
Throughout June we’ve been celebrating your nystagmus success stories in our campaign ‘How amazing are you?’ Today, Ellen shares her story: “My name is Ellen and I’m 32 years old. I’m … Continue reading How amazing is Ellen?
Trustees discuss Parent Power with Marsha
On Thursday 20 June, Nystagmus Awareness Day a group of Nystagmus Network trustees met with Marsha de Cordova MP in Parliament. Earlier that morning, Marsha had tweeted her own Nystagmus … Continue reading Trustees discuss Parent Power with Marsha
How amazing is Sonny-John?
In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” On Nystagmus Awareness Day itself a … Continue reading How amazing is Sonny-John?