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Author: Sue Ricketts

How amazing is Bradley


We couldn’t resist one more ‘amazing’ nystagmus success story. Not everyone with nystagmus can drive, but Bradley has turned driving into his philosophy on life. My name is Bradley. I’ve … Continue reading How amazing is Bradley

Posted on June 26, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, driving, nystagmus, ZING

2018 exams access arrangements feedback


Our friends at VIEW need your help. VIEW is a registered charity, which represents Qualified Teachers of Visually Impaired children and young people (QTVIs). It exists to help support the education, development and opportunities … Continue reading 2018 exams access arrangements feedback

Posted on June 26, 2018Author Sue RickettsCategories Guest postsTags exams access arrangements, VIEW

Want to abseil at the Queen Elizabeth Olympic Park?


Could you take the plunge and abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park? It’s an exhilarating descent to … Continue reading Want to abseil at the Queen Elizabeth Olympic Park?

Posted on June 25, 2018June 26, 2018Author Sue RickettsCategories FundraisingTags abseil, Moorfields Eye Hospital, nystagmus research, University College London

Sign up to Easy Fundraising for free donations


Every time you shop online you could be raising a donation for the Nystagmus Network, absolutely free. All you need to do is visit the Easy Fundraising website and click … Continue reading Sign up to Easy Fundraising for free donations

Posted on June 25, 2018Author Sue RickettsCategories FundraisingTags Easy Fundraising

An inspiring meeting with David Katz


The day before Nystagmus Awareness Day 2018, Information and Development Manager, Sue, and trustee, Peter, travelled to London to meet a very inspirational man – internationally acclaimed ‘blind’ photographer, David … Continue reading An inspiring meeting with David Katz

Posted on June 21, 2018Author Sue RickettsCategories Nystagmus Awareness Day, Open Day 2018Tags David Katz, Through my Lenses

Charity trustees meet Marsha


On the Tuesday of ‘wobbly week’ 2018, a group of trustees were invited to Parliament to meet with Marsha De Cordova MP, Shadow Minister for Disabilities. Marsha has nystagmus herself … Continue reading Charity trustees meet Marsha

Posted on June 21, 2018Author Sue RickettsCategories Charity highlights, Nystagmus Awareness Day, Open Day 2018Tags Marsha de Cordova, nystagmus
Sue presenting at Open Day.

Sue shares her personal nystagmus story


On Nystagmus Awareness Day 2018, the Nystagmus Network’s Information and Development Manager, Sue, shared her nystagmus story and explained why it’s so important to continue to raise awareness of nystagmus. … Continue reading Sue shares her personal nystagmus story

Posted on June 21, 2018Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags awareness, nystagmus

How amazing is Sara?


A guest post from Sara’s Mum … This is my daughter Sara. She’s 17 now and born with albinism and nystagmus. Her sight is badly affected, but nothing stops her!!! … Continue reading How amazing is Sara?

Posted on June 20, 2018Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags amazing nystagmus success stories, nystagmus, ZING

How amazing is Amanda


Amanda is a long time supporter of the Nystagmus Network UK and our unofficial US spokesperson. As a professional freelance writer, who also has nystagmus, she is well placed to … Continue reading How amazing is Amanda

Posted on June 19, 2018June 19, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, school, US, ZING

How amazing is Gary?


Here’s Gary’s sporty nystagmus success story … Since 2014 I’ve been playing county cricket for Warwickshire Visually Impaired Cricket Club. The club comprises players of all ages (my shirt number … Continue reading How amazing is Gary?

Posted on June 19, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, cricket, disability sports classification, nystagmus, sport, ZING

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