A postcard with details of the big nystagmus meet up Manchester featuring the Manchester bee.

The big ‘nystagmus’ meet up – Manchester


Saturday 23 September, 10am to 3pm You are warmly invited to join Nystagmus Network staff and trustees for our next in person event – the big nystagmus meet up, Manchester. … Continue reading The big ‘nystagmus’ meet up – Manchester

Sue wears a Nystagmus Network T-shirt and sits at her exhibition table.

Sue at VIEW


Nystagmus Network’s Sue Ricketts travelled to Birmingham last week for the annual conference of VIEW, the national body representing Qualified Teachers of Visually Impaired children and young people (QTVIs). Delegates … Continue reading Sue at VIEW

The hands of someone working at a desk.

Nystagmus awareness at work


A guest post After my first proper job following university, I decided to ‘come out’ about my disability and support needs. I was worried this might make me stand out … Continue reading Nystagmus awareness at work

A thank you card from the Nystagmus Network showing an image of 2 boys taking part in a team building exercise.

It’s so nice to be appreciated


In 2021 the Nystagmus Network supported 591 people to come to terms with nystagmus, to find the support and information they needed. We’re even busier in 2022, as more and … Continue reading It’s so nice to be appreciated

The front cover of the BNystagmus Network guide to nystagmus and benefits.

A new guide to nystagmus and benefits


From our monthly virtual support networks to our free benefits advice, the Nystagmus Network is always here for you. As we emerge from the pandemic, we’re all feeling the financial pressure of increasing … Continue reading A new guide to nystagmus and benefits