B4 logo

Discrimination against B4 athletes within International Blind Sport


Charities supporting people living with vision impairments, including the Nystagmus Network and the Albinism Fellowship UK, have signed an open letter from B4 International Blind Sports, outlining concerns about discrimination … Continue reading Discrimination against B4 athletes within International Blind Sport

A thank you card from the Nystagmus Network showing an image of 2 boys taking part in a team building exercise.

BBC charity appeal raises £8,000


Following transmission of the Nystagmus Network’s Radio 4 appeal, presented by Richard Osman, the charity has received universally positive feedback on the clarity of the broadcast’s message. One listener, in … Continue reading BBC charity appeal raises £8,000

Shining a light in a woman's eye during an eye exam.

Research participation opportunity


People with nystagmus are being invited to contribute to medical research by sharing their experiences of accessing a patient information pack, designed to support people living with the little known … Continue reading Research participation opportunity

The logo of the Albinism Fellowship

Welcome boost for new mums and dads of young children with albinism


Guest post from Roselle Potts, Albinism Fellowship For more information, please contact Roselle Potts, email: chair@albinism.org.uk While the birth of a new baby is an occasion to celebrate, parents of … Continue reading Welcome boost for new mums and dads of young children with albinism

Roger stands in his garden.

Nystagmus is … a guide for adults


A fabulous new publication, Nystagmus is … a guide for adults, is now available FREE from our online shop. The booklet is inspired by the wonderful Roger (pictured), who first contacted us … Continue reading Nystagmus is … a guide for adults

Community Fund logo

The Nystagmus Network receives £8,000 from the National Lottery to increase our support services


The Nystagmus Network is delighted to have been awarded just over £8,000 in National Lottery funding to underpin its work supporting adults with nystagmus. The charity will use the funding … Continue reading The Nystagmus Network receives £8,000 from the National Lottery to increase our support services

Children reading The Gruffalo.

The impact of COVID-19 on visually impaired children


A guest post from Rosaleen Dempsey, RNIB Hi there I am from the children’s services in RNIB. Wonder if you would mind sharing a survey for families about the impact … Continue reading The impact of COVID-19 on visually impaired children