The Royal Parks Half Marathon is a spectacular run through central London – the first and only one of its kind. The stunning 13.1 mile route takes in the capital’s … Continue reading Run the Royal Parks
Category: Nystagmus heroes
Wiggly Walk 2
The amazing Mike Larcombe, nystagmus champion extraordinaire is at it again! You will remember, of course, that in 2019/2020 Mike walked the entire length of New Zealand to raise awareness … Continue reading Wiggly Walk 2
The Nystagmus Champions of 2021
Nystagmus Network Vice-chair, Peter Greenwood, was delighted to announce the ‘nystagmus champions’ of 2021 at the end of Open Day party on 25 September. Tyler UrquhartThe Urquhart family are, quite … Continue reading The Nystagmus Champions of 2021
How amazing is Edwin?
I was born with CN and for the most part consider myself to be lucky compared to many in our group. Service to others has been a significant part of … Continue reading How amazing is Edwin?
How amazing is Wyatt?
Wyatt has always had this positive outlook. He is determined, smart, and gives EVERYTHING his all! When he was 4 months old he was diagnosed with Nystagmus. We as parents … Continue reading How amazing is Wyatt?
How amazing is Grayson?
I am Grayson and I am 5 on 18 June. I have Ocular Albinism and Nystagmus. When I started school in September, I was very scared and very nervous and was … Continue reading How amazing is Grayson?
How amazing is Poppy?
My name is Poppy. I’m 11 years old. I was diagnosed with nystagmus when I was 2 months old. I never allow my nystagmus to hold me back. I love … Continue reading How amazing is Poppy?
How amazing is Katrina?
Katrina did well at school, has worked hard throughout the pandemic and keeps herself fit with clubbercise. She says: I have had congenital nystagmus all my life and I have … Continue reading How amazing is Katrina?
How amazing is Tim?
Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story … Continue reading How amazing is Tim?
How amazing is Doug?
Earlier this year, Doug ran the Royal Parks Half Marathon for the Nystagmus Network. He raised £200. Doug says: 13.1 miles. 25,000 steps, a step for every time someone has … Continue reading How amazing is Doug?