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With people joining us from both sides of the Atlantic, there was some very interesting discussion at the most recent Nystagmus Network forum for adults with Acquired Nystagmus and Oscillopsia. … Continue reading Notes from the January AN/Oscillopsia Forum
The Nystagmus Network runs regular virtual get togethers for parents and carers on Zoom. Here’s Sue’s report on the January event, which focused on homeschooling. It was lovely to see … Continue reading Notes from the January Parent Forum
With a most difficult year now thankfully behind us, the Nystagmus Network is here to support the nystagmus community in any way we can. Keeping you connected Virtual meet ups for … Continue reading Nystagmus Networking
Nystagmus Network Chairman, Tim Cuddeford has sent a Christmas message to members of the Nystagmus Network. Tim spoke of the challenges that 2020 has brought for everyone, not least the … Continue reading A Christmas message from Tim
Thank you to everyone who gave to our BBC Radio 4 charity appeal in June this year. The appeal raised £9, 230. You can read what a difference the appeal … Continue reading Thank you for donating to our BBC Radio 4 appeal
It’s fitting that our final nystagmus hero of 2020 is someone who has been working tirelessly all year looking after some of our most vulnerable people. Zoe is a care … Continue reading Thank you, Zoe
On World Sight Day 2020, Nikita was named an Eye Health Hero by the IAPB (the International Agency for the Prevention of Blindness). Nominated for her innovative work in perimetry, … Continue reading Thank you, Nikita
Thanks to her book ‘Can I tell you about nystagmus?’, children and their parents feel better able to explain nystagmus to others. In 2020, with the country in lockdown and … Continue reading Thank you, Nadine
What can we say about Mike that hasn’t been said already? He endured so much for the nystagmus cause this year – including very wet feet, a constantly rumbling tummy … Continue reading Thank you, Mike
Thank you to everyone who has ordered a woolly nystagmus mascot this year. We are now officially sold out. Together you have raised £360 and given new homes to 72 … Continue reading Sold out!
