Blog
Stay up to date with all our latest news, stories and features in one place.
Stay up to date with all our latest news, stories and features in one place.
A man from Cardiff is taking Uber to court over claims they refused to pick him up with his guide dog on more than 100 occasions. Cardiff-based entrepreneur, Dan Williams … Continue reading ‘Rip Off Britain’ air Dan’s story of Uber refusals
If you missed Richard Osman presenting the Nystagmus Network charity appeal on BBC Radio 4 at 07.54 this morning you can listen again now. Listen again here Make a donation … Continue reading Missed the appeal? Listen again!
We are delighted to announce that 16 year old Wilson is the winner of our Nystagmus Awareness Day photography competition: The View from my Window. Wilson is very pleased to … Continue reading Wilson’s winning window
Ifigeneia Manitsa is a Psychology researcher at Kingston University London and her research is about the social and academic inclusion of adolescents with and without visual impairments. She is currently conducting … Continue reading Calling parents of 12-14 year olds – research questionnaire
People with nystagmus are being invited to contribute to medical research by sharing their experiences of accessing a patient information pack, designed to support people living with the little known … Continue reading Research participation opportunity
The Nystagmus Network is delighted to announce that it has been granted a BBC Radio 4 charity appeal. The appeal will be presented by well known TV presenter, broadcaster and … Continue reading Richard Osman to voice Radio 4 appeal
A Guest Post by author and nystagmus Mum, Nadine Neckles So the world has turned on its head and what we once considered normal and safe has morphed into anxiety … Continue reading Homeschooling and nystagmus
In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both … Continue reading Nystagmus in lockdown
Nystagmus Awareness Day – 20 June 2020 It’s national and international Nystagmus Awareness Day on Saturday 20 June 2020. We may all be staying at home this year, but we … Continue reading Nystagmus Awareness Day 20 June 20
Guest post from Roselle Potts, Albinism Fellowship For more information, please contact Roselle Potts, email: [email protected] While the birth of a new baby is an occasion to celebrate, parents of … Continue reading Welcome boost for new mums and dads of young children with albinism