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“Expectations Exceeded” Parent and family workshop run by Friends of Moorfields and Blind in Business Friday 22 May 2020 2pm to 5pm Kemp House (next to Moorfields Eye Hospital) 152-160 … Continue reading Blind in Business event
Free digital skills, information and well-being event for families with visually impaired children Saturday 28th March 1.30-4pm Swansea University Health and Wellbeing Centre To book a place contact Sue Neale … Continue reading Digital Skills and Well-being event
Parent carer voices are essential to help shape the services they need for their children and young people. The East Sussex Parent Carer Forum would like you to get involved.
A guest post. A couple of years ago, I wrote a piece about being a parent with nystagmus of a child without. That child is now old enough to tell … Continue reading Julia’s musical adventures
The Nystagmus Network has launched 3 brand new official Facebook groups this week to help members of the nystagmus community come together to share their experiences, their problems and their … Continue reading Our new Facebook groups
Our lovely knitting volunteer, Lynda has just delivered a new supply of Nystagmus Network mascots for our online shop. Each mascot represents a child who has nystagmus and wears a … Continue reading Thank you, Lynda
It’s thought that some types of nystagmus are caused by a genetic spelling mistake. Although nystagmus is not classified officially as a rare disease, we can all take part in … Continue reading Volunteers needed
Delegates at 100% Optical learned about progress on refining the way an eye movement disorder is identified in babies Professor Jon Erichsen from the University of Cardiff gave a presentation … Continue reading Improving the infantile nystagmus test
We are delighted to announce that Professor Alison Leary MBE has joined the Nystagmus Network as a trustee. After spending 10 years in science Prof. Leary undertook an RN diploma … Continue reading Alison joins the Nystagmus Network
Common misconceptions about nystagmus A team of nystagmus researchers in the UK have recently shown that there is significant variation in the way people with nystagmus are supported and given … Continue reading Nystagmus researchers need your help
