Local nystagmus networks

If you can help the Nystagmus Network to set up and run a local group or face to face meet up, a chance for people living with nystagmus: adults, children and young people and their parents, to get together to share experiences and support, please contact us. Thank you.

The Nystagmus Network is planning to set up a series of regional nystagmus groups, but our small staff team can’t do it on their own. We need your help!

We would love to hear from you if you could organise a get together in a local cafe, park or village hall for people in your area living with nystagmus.

Although 1 in 1,000 people have nystagmus you can go a whole lifetime without meeting anyone else who has the condition.

Meeting someone who shares your experience is invaluable. If you’d like to help us make that happen, please visit our Volunteering Opportunities. Thank you.