If you can help the Nystagmus Network to set up and run a local group or face to face meet up, a chance for people living with nystagmus: adults, children and young people and their parents, to get together to share experiences and support, please contact us. Thank you.
We would love to hear from you if you could organise a get together in a local cafe, park or village hall for people in your area living with nystagmus.
Nystagmus is not a rare condition, but you can go a whole lifetime without meeting anyone else who has the condition.
Meeting someone to who shares your experience is invaluable. Please contact us if you’d like to help us make that happen. Thank you.