The Nystagmus Network has been awarded ONE PLACE in the London Marathon 2026. The place will go to the applicant who makes the most compelling case to us. To apply … Continue reading The London Marathon – April 2026
Tag: nystagmus
SEND inquiry – please take our survey
Dear Parents and Carers The Education Select Committee is seeking evidence on short term actions to stabilise the SEND system which is currently experiencing increased demand, protracted waiting times … Continue reading SEND inquiry – please take our survey
A New Year honour for Vivien, founder of the Nystagmus Network
We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE “for services to the nystagmus community” in … Continue reading A New Year honour for Vivien, founder of the Nystagmus Network
Justine receives her prize at the House of Lords
Justine Chan, who is currently studying medicine at the University of Cambridge, won the Richard Wilson Essay Prize 2024. Part of her prize was to receive her £500 cheque at … Continue reading Justine receives her prize at the House of Lords
Aunt Rhoda’s gift to nystagmus research
In 2023 the Nystagmus Network received a legacy gift from the late Mrs Rhoda Clarke in the sum of £32,114. 71 The gift was made in the name of Mrs … Continue reading Aunt Rhoda’s gift to nystagmus research
Take part in research on signage
Elliot Judge is a third-year undergraduate student at Nottingham Trent University, studying Graphic Design. For his dissertation, he is investigating how public signage can be better designed to suit the … Continue reading Take part in research on signage
Giving Tuesday opportunities for you
On Giving Tuesday 2024, the Nystagmus Network is offering you lots of opportunities to contribute to the work of the charity. On 3 December you can pledge your time and … Continue reading Giving Tuesday opportunities for you
Marsha de Cordova MP appointed ambassador to the Nystagmus Network
The Nystagmus Network, a UK charity dedicated to supporting individuals and families living with nystagmus for over 40 years, is pleased to announce the appointment of Marsha de Cordova MP … Continue reading Marsha de Cordova MP appointed ambassador to the Nystagmus Network
Cascade Project – updated criteria
A research team at Anglia Ruskin University is recruiting parents to take part in their latest research project. Here’s the team to introduce it: We’d like to let you know … Continue reading Cascade Project – updated criteria
A Ruby Celebration at the House of Lords
Forty years ago this month a young mother sat at her kitchen table with a notepad and pen as her infant son slept. She’d just received the devastating news that … Continue reading A Ruby Celebration at the House of Lords