When my daughter was 6 weeks old a paediatrician at baby clinic told me she was blind. Just like that. No preamble. It was a devastating experience, a cruel message, … Continue reading 30 years of nystagmus research – what a difference it has made
Tag: nystagmus
Does nystagmus or ocular albinism affect my immunity?
Lots of you are asking us this question and some of you have received notification letters from the government. We asked for expert clinical advice and received the following statement: … Continue reading Does nystagmus or ocular albinism affect my immunity?
Julia’s musical adventures
A guest post. A couple of years ago, I wrote a piece about being a parent with nystagmus of a child without. That child is now old enough to tell … Continue reading Julia’s musical adventures
Nystagmus researchers need your help
Common misconceptions about nystagmus A team of nystagmus researchers in the UK have recently shown that there is significant variation in the way people with nystagmus are supported and given … Continue reading Nystagmus researchers need your help
Fight for Sight survey on eye conditions and sight loss
Fight for Sight needs your help as part of a ground-breaking survey into the experience of living with sight loss or an eye condition. By taking part in the survey … Continue reading Fight for Sight survey on eye conditions and sight loss
Are you going to LookFest 2020?
LookFest is an accessible family festival outdoors and under canvas for families where there are children and young people with impaired vision.After the huge success of LookFest 19, they’re doing … Continue reading Are you going to LookFest 2020?
Reading an optician’s prescription
Although glasses cannot stop nystagmus they can correct refractive errors, such as long or short sight and astigmatism, to make the sight as clear as it can be. Do you … Continue reading Reading an optician’s prescription
Nystagmus and driving by Sophie
Please download our guide to Nystagmus and Driving here This guest post is from blogger, Sophie who shares her experience of living, laughing and loving with nystagmus in her blog … Continue reading Nystagmus and driving by Sophie
Nystagmus, the way we see it
If you’ve ever wondered how a person with nystagmus sees or how the condition affects their sight, listen to Richard, Harriet and Will explain in our video. You can show … Continue reading Nystagmus, the way we see it
Nystagmus question on Fifteen to One
If you happened to be watching popular Channel 4 TV quiz show, Fifteen to One on Wednesday 19th December and were paying very close attention you will have heard a … Continue reading Nystagmus question on Fifteen to One