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Author: Sue Ricketts

Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online


We all shop online, but did you know that, by signing up with Easyfundraising.com you could be raising money for the Nystagmus Network – and it doesn’t cost you a … Continue reading Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online

Posted on April 11, 2018April 18, 2018Author Sue RickettsCategories Fundraising, Posts
ECLO chatting with patient.

Do you know your ECLO?


If you or someone in your family has nystagmus, then make sure you meet your ECLO (Eye Clinic Liaison Officer). You can ask for them the next time you visit … Continue reading Do you know your ECLO?

Posted on April 10, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags ECLO, nystagmus
rebecca presents at the Nystagmus Network Open Day

Nystagmus and Quality of Life


A research paper is republished this month into the quality of life of people living with nystagmus. Professor Irene Gottlob and Dr Rebecca McLean from the University of Leicester shared … Continue reading Nystagmus and Quality of Life

Posted on April 9, 2018April 17, 2018Author Sue RickettsCategories researchTags nystagmus, quality of life

Join the crowds to cheer on Julian as he begins his Big Blind Walk


If you can join Julian for just one of the 1,000 miles he plans to walk for sight research, or stand at the side of the road as he passes … Continue reading Join the crowds to cheer on Julian as he begins his Big Blind Walk

Posted on April 4, 2018Author Sue RickettsCategories Charity highlights, EventsTags Big Blind Walk
Researcher presenting at Open Day.

More rejections than Harry Potter?


  A report by John Sanders who, at different times, has been a Nystagmus Network trustee, as well as an employee and continues to be a member of the charity. … Continue reading More rejections than Harry Potter?

Posted on March 28, 2018April 3, 2018Author Sue RickettsCategories researchTags congenital nystagmus, Helena Lee, University of Leicester, University of Southampton

Thank you to Mike and Studley Wood GC


Nystagmus Network trustee and golfing enthusiast, Peter Greenwood, traveled to Studley Wood Golf Club in Oxfordshire earlier this week to receive, on behalf of the charity, a cheque for £4,300. … Continue reading Thank you to Mike and Studley Wood GC

Posted on March 27, 2018April 3, 2018Author Sue RickettsCategories Charity highlights, Events, Fundraising

Nystagmus Network Snow Camps 2018


Thanks to Outspan Rebels team founder, Jamie Fuller, who has managed to secure sponsorship from the Snow Sports Foundation, there will be two Nystagmus Network Snow Camps this summer. These … Continue reading Nystagmus Network Snow Camps 2018

Posted on March 22, 2018Author Sue RickettsCategories EventsTags skiing, Snow Camp

The Outspan Rebels VI ski team


Jamie and Josh Fuller are well known in the nystagmus community as the father and son team who delivered an inspirational presentation at Open Day last September. Jamie organised the … Continue reading The Outspan Rebels VI ski team

Posted on March 21, 2018Author Sue RickettsCategories Charity highlightsTags Outspan Rebels VI ski team, skiing

A photographer’s dream come true


Internationally acclaimed photographer and Nystagmus Network member, David Katz, has just returned from the assignment of a lifetime, covering the Winter Paralympics in Pyeongchang. He has put together an incredible … Continue reading A photographer’s dream come true

Posted on March 21, 2018Author Sue RickettsCategories Open Day 2018Tags David Katz, Pyeongchang, Winter Paralympics
Gift Aid it - logo

Have you signed up for Gift Aid?


Did you know that for every pound you donate to the Nystagmus Network and for every pound of your annual membership subscription we can claim an additional 25p back from … Continue reading Have you signed up for Gift Aid?

Posted on March 19, 2018September 3, 2018Author Sue RickettsCategories Charity highlightsTags Gift Aid

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