Calling all sports and athletics clubs – we want you to join us for ‘nystagmus in the open‘ on national and international Nystagmus Awareness Day on Wednesday 20 June. We … Continue reading Nystagmus Awareness Day – for sports clubs
Author: Sue Ricketts
Nystagmus Awareness Day – for snow men!
Whilst we are all looking forward to the very first Nystagmus Awareness Day in the summer – on Wednesday 20 June – for those of you who miss the old … Continue reading Nystagmus Awareness Day – for snow men!
Nystagmus in the garden
To mark the end of Wobbly Week 2018, Sue will be opening her tiny courtyard garden in Lincolnshire to the public for ‘nystagmus in the open‘. There will be tea and … Continue reading Nystagmus in the garden
Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online
We all shop online, but did you know that, by signing up with Easyfundraising.com you could be raising money for the Nystagmus Network – and it doesn’t cost you a … Continue reading Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online
Do you know your ECLO?
If you or someone in your family has nystagmus, then make sure you meet your ECLO (Eye Clinic Liaison Officer). You can ask for them the next time you visit … Continue reading Do you know your ECLO?
Nystagmus and Quality of Life
A research paper is republished this month into the quality of life of people living with nystagmus. Professor Irene Gottlob and Dr Rebecca McLean from the University of Leicester shared … Continue reading Nystagmus and Quality of Life
Join the crowds to cheer on Julian as he begins his Big Blind Walk
If you can join Julian for just one of the 1,000 miles he plans to walk for sight research, or stand at the side of the road as he passes … Continue reading Join the crowds to cheer on Julian as he begins his Big Blind Walk
More rejections than Harry Potter?
A report by John Sanders who, at different times, has been a Nystagmus Network trustee, as well as an employee and continues to be a member of the charity. … Continue reading More rejections than Harry Potter?
Thank you to Mike and Studley Wood GC
Nystagmus Network trustee and golfing enthusiast, Peter Greenwood, traveled to Studley Wood Golf Club in Oxfordshire earlier this week to receive, on behalf of the charity, a cheque for £4,300. … Continue reading Thank you to Mike and Studley Wood GC
Nystagmus Network Snow Camps 2018
Thanks to Outspan Rebels team founder, Jamie Fuller, who has managed to secure sponsorship from the Snow Sports Foundation, there will be two Nystagmus Network Snow Camps this summer. These … Continue reading Nystagmus Network Snow Camps 2018