Fundraising? It’s a Colson family affair


The Colson family are serious about fundraising for nystagmus research. Sisters Laura and Ellie are taking part in the Peak District Ultra Challenge this summer, their first ever ultra marathon, whilst their brother, Ryan, CEO of the family firm, Colson Skips, is getting his entire workforce right behind them. If you’d like to sponsor Laura … Continue reading Fundraising? It’s a Colson family affair

Walk with us!


There’s still time to register to join Team Nystagmus Network to walk Eye to Eye at 11am on Sunday 10th March. You can choose to walk the 4 or 14 mile route. Team Nystagmus Network sets off at 11am. Who’s on the team? Join Ella and Sam, Andy and Heidi, Andrew, Orla, Nikki and Tremaine, … Continue reading Walk with us!

Remember us on Valentine’s Day


If you’re ordering that special Valentine’s Day gift for a loved one online, please remember your favourite charity, too. There are loads of retailers you might not even know are on the Easyfundraising site, such as Moonpig, Hotel Chocolat, Thorntons, Interflora, Buyagift, Pandora, Virgin Experience Days and loads more. You’ll find some brilliant voucher codes … Continue reading Remember us on Valentine’s Day

The Nystagmus Network Ball


Nystagmus Network Chairman and Toast Master for the evening, Richard Wilson OBE, and his fellow charity trustees, cordially invite you to  the Nystagmus Network Ball. Date:      Sunday, 25 AugustTime:      7pm to midnightTickets:   £45 per personVenue:    The Crowne Plaza Hotel, Birmingham Our wonderful volunteer organiser, Ann-Marie Ann-Marie is a longstanding member of the Nystagmus … Continue reading The Nystagmus Network Ball

Calling university applicants


A guest post on behalf of Rachel, from the University of Birmingham: I am looking for students with vision impairment in the UK who are currently applying for higher education to evaluate some guidance material we have put together. Vouchers for those who take part! Please contact me at r.g.hewett@bham.ac.uk Find out more by clicking … Continue reading Calling university applicants

Patient Information Day at SELVIS


For families, individuals, children and young people, professionals and organisations SATURDAY 30 MARCH 2019 11:00-15:00 London Vision South East, Can Mezzanine 7-14 Great Dover Street, London, SE1 4YR Come along to find out about the new parent network and what’s available, or needed, in your area, and for general information and advice: Eye condition information … Continue reading Patient Information Day at SELVIS

A lesson in nystagmus


The Nystagmus Network has a free to download lesson plan about nystagmus. Designed for use in schools and preschools on Nystagmus Awareness Day or any other day of the year, the aim is to raise awareness of nystagmus and its wider effects and to help a child with nystagmus feel more included in the classroom. … Continue reading A lesson in nystagmus