At the recent celebration for Professor Irene Gottlob at the University of Leicester, Dr Frank Proudlock spoke about nystagmus and reading. Frank commented that people with congenital nystagmus can read at the same speed as fully sighted people, provided the print is large and clear enough, that the intensity of the nystagmus does not affect … Continue reading Congenital nystagmus and reading
The Nystagmus Network trustees publish today their Research Strategy document for the next 3 years of nystagmus research, collaborations and funding arrangements. CLICK HERE to download your free copy today. Read more about nystagmus research, here.
The Nystagmus Network has been awarded a small grant by the Millennium Stadium Charitable Trust to sponsor a number of free places at Open Day 2019 for Cardiff families. The event takes place on Saturday 28 September at the Principality Stadium, Cardiff. If you or someone you know would benefit from attending this event, please … Continue reading Free Open Day places for Cardiff families
Children with nystagmus receive a grant from Jeans For Genes Day 2019 In July 2019, the Nystagmus Network is celebrating after hearing the news they will receive a grant from Genetic Disorders UK, the national charity which organises the annual fundraising day, Jeans for Genes Day. This grant, from funds raised on the Day, will … Continue reading Jeans for nystagmus genes
Parent Power, funded by the National Lottery Community Fund The Nystagmus Network is now inviting parents and carers to attend the first of our Parent Power education workshops. Location: Southampton Date: Saturday 12 October Time: 10am to 2pm Lunch will be provided. This is an adults only event. The aim of the project … Continue reading Parent Power comes to Southampton
Today Nystagmus Network’s Sue and Sara are travelling to Leicester University to attend a day of celebrations. We shall be marking 20 years of ophthalmology in Leicester and, in particular, the work of Professor Irene Gottlob. The programme for the day, at the Ulverscroft Eye Unit, includes a range of presentations on various eye conditions, … Continue reading In celebration of Irene
The Nystagmus Network would like to say a huge thank you to Shirley Pennington, her family, friends and local Shropshire community. Shirley recently organised an auction of promises to raise money for the Nystagmus Network. Shirley’s event raised a phenomenal £16,625! The auction was in part a celebration of Shirley’s son, James’s marriage to Rhiann … Continue reading Thank you, Shirley
Trustees are pleased to announce that the 2018 Annual Review of the Nystagmus Network is now published on the Charities Commission website. Chairman of the charity, Richard Wilson OBE, says: “In summary, 2018 has been an outstanding year of success for the Nystagmus Network, building more awareness, investing in more research, offering more support and … Continue reading We publish our annual review 2018
As ‘wobbly week’ draws to a close for another year we just wanted to thank everyone for making Nystagmus Awareness day 2019 such a success. Thank you to our fundraisers, event organisers and all the parkrunners. Thank you for your amazing nystagmus success stories, your videos, photos, your donations, presentations, displays and quizzes and thank … Continue reading Thank you – you are amazing
Thank you for sending us all your nystagmus success stories. We just love to read them and we know they bring hope and inspiration to so many people. Today we introduce Aneeba. Aneeba has a rare genetic condition called Lawrence Moon Bardet Biedl syndrome. She’s always worn glasses since she was 8 months old and … Continue reading How amazing is Aneeba?