Guest post: Mélissa’s story of acquired nystagmus


Mélissa was a healthy young woman, living and working in Canada until suddenly she acquired nystagmus and everything changed. Melissa is now adjusting to her new life with nystagmus and wanted to share her story of hope for the future … My beautiful, wobbly world My name is Mélissa Khalifé, I’m 29 years old and … Continue reading Guest post: Mélissa’s story of acquired nystagmus

Join our Manchester group


The first meeting of our brand new North West regional group took place on Saturday 17 November in Manchester. Huge thanks to Nystagmus Network trustee, Marie Turnbull for hosting, to Mike and Lindsi for their professional input and to the families and adults who came along. The next meeting of this group is on Saturday 26 … Continue reading Join our Manchester group

#YouMadeItHappen – Bronagh and Susan


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Bronagh and Susan – you helped make that happen! Today the whole nystagmus community says thank you to … Continue reading #YouMadeItHappen – Bronagh and Susan

#YouMadeItHappen – James and Thomas


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 James and Thomas – you helped make that happen! Today the whole nystagmus community says thank you to … Continue reading #YouMadeItHappen – James and Thomas

#YouMadeItHappen – Clare


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Clare – you helped make that happen! Today the whole nystagmus community says than you to you.

#YouMadeItHappen – Glen


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Glen and the whole abseil team – you helped make that happen! Today the whole nystagmus community says … Continue reading #YouMadeItHappen – Glen

#YouMadeItHappen – Steph


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Steph – you helped make that happen! Today the whole nystagmus community says thank you to you.

#YouMadeItHappen – Harry


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Harry – you helped make that happen! Today the whole nystagmus community says thank you to you.

#YouMadeItHappen – Simon


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Simon – you helped make that happen! Today the whole nystagmus community says thank you to you.

#YouMadeItHappen – Sarah and Lisa


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Sarah and Lisa – you helped make that happen! Today the whole nystagmus community says thank you to … Continue reading #YouMadeItHappen – Sarah and Lisa