Published today as part of National Eye Health Week, a new YouTube video by Emily Davison, also known online as the Fashioneyesta, tells what nystagmus is and how it affects daily life. Watch Emily’s video here.
Steph and her team completed the Yorkshire 3 Peaks Challenge on Saturday in 11 hours 45 minutes. Well done, team! They were doing this in honour of Steph’s young son, Henry, who has nystagmus and they’ve so far raised over £1,000 for the Nystagmus Network! Thank you from everyone at the charity. You can still … Continue reading Yorkshire 3 Peaks – completed!
Although the Team Nystagmus Network / Moorfields Eye Charity fundraising abseil at the ArcelorMittal Orbit couldn’t go ahead on Sunday morning as planned due to heavy rain and high winds, Vicki and Tom took advantage of some available slots on Saturday morning and took their leap for nystagmus research then. Congratulations, Vicki and Tom! You’re … Continue reading They did it!
Did you know that for just £1 per week you could be in with a chance to win £25,000? You could, if you signed up to the Nystagmus Network lottery. The even better news is that, once all the prizes are paid for, all profits come directly to the Nystagmus Network as a donation. If … Continue reading Sign up to the Nystagmus Network lottery
This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London. Our 10 intrepid Team Nystagmus Network … Continue reading The abseil is this weekend!
Nystagmus Network’s Rachel, writes: Here at the Nystagmus Network we’re always looking for new opportunities for our members. Recently our Education Advocate, Frances, came across a charity awarding grants to blind and partially sighted children for music lessons. The Amber Trust offers grants for singing or instrumental lessons, music therapy and concert tickets to children … Continue reading Little Amber – there to help
With thanks to Mike Hughes, our volunteer benefits adviser, who has today supplied a newly updated edition of his booklet on nystagmus and benefits. The new version, taking into account all the latest changes in legislation, is now available free of charge. Download your copy here. Mike will, of course, be at Open Day to … Continue reading Publication update
Last Sunday Bronagh and Susan completed the Spartan Scotland 2018 challenge for the Nystagmus Network. That’s a lot of running, a lot of obstacles and an awful lot of mud. But they did it – in just 3 hours. Well done and thank you to both of them from everyone at Nystagmus Network. You can … Continue reading Well done, Bronagh and Susan!
Thanks to Paul Bowry and his family, the Nystagmus Network will be enjoying our first ever fundraising Car Boot Sale on Tuesday 18 September. Paul has been running boot fairs at the site in Essex for some time. Following his grandson’s nystagmus diagnosis, Paul decided to negotiate a charity collection with the organisers at one … Continue reading Another Nystagmus Network first!
Here’s a fundraising opportunity with a difference! You can choose to cycle a 50k or 100k route around London, Bristol, Glasgow or Liverpool AT NIGHT with Nightrider 2019. Provided you book your own place before 31 December, the registration fee is just £75. Then, simply set up your Justgiving page linked to the Nystagmus Network as … Continue reading #notyourusualnightout