Parent Power comes to Cambridge


Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue:      DoubleTree by Hilton, Cambridge City Centre Date:          Saturday 25 January Time:         10am to 2pm The aim of the project is to empower parents and carers with legally based information on … Continue reading Parent Power comes to Cambridge

We’ve been paid!


Huge thanks to all our supporters who’ve been shopping all summer long using Easyfundraising. Thanks to you, we’ve just received an Easyfundraising total donation of £254.94. Please use Easyfundraising when you’re doing your Christmas shopping, too and help us raise even more money for nystagmus. Not signed up yet? Please click here. It’s fundraising for … Continue reading We’ve been paid!

Help Fight for Sight study the effects of sight loss


Here’s a research participation opportunity thanks to our friends at Fight for Sight. “We’re launching an online survey to help demonstrate the personal impact of sight loss. We’re inviting everyone affected by sight loss or an eye condition – either personally or indirectly via someone they care for – to participate in the survey and … Continue reading Help Fight for Sight study the effects of sight loss

Help us win a £1,000 donation


A specialist charity insurer has launched its annual festive campaign to donate £1,000 to 120 charities over the 12 days leading up to Christmas. The campaign is called 12 Days of Giving and is being run by insurance firm Ecclesiastical. Winners are drawn at random. The more times a charity is nominated online the better chance … Continue reading Help us win a £1,000 donation

Handheld OCT can predict future vision in infantile nystagmus


Dr Mervyn Thomas of the Ulverscroft Eye Unit, University of Leicester developed a grading system for arrested retinal development as a med student in 2011. 8 years later the team shows it can predict future vision in preverbal children with nystagmus. This development highlights the importance of research investment in diagnostics and also answers the … Continue reading Handheld OCT can predict future vision in infantile nystagmus

Nystagmus and sleep


Parents often report that their children experience problems sleeping and wonder whether there is any connection with nystagmus. Now a team at University College, London is conducting a research study into vision impairment and sleep patterns. Jess Marshall is a research assistant at UCL Institute of Education. Jess is working on Dr Jessica Hayton’s project … Continue reading Nystagmus and sleep

Calling all Caregivers – take part in research


Guest post by Jamie Enoch, Researcher at School of Health Sciences at City University London Are you a UK-based relative, friend or caregiver of someone living with a visual impairment? Do you have 10-15 minutes to spare? If yes, please consider taking our survey on your experience of support services. Thank you. Find out more … Continue reading Calling all Caregivers – take part in research

Fingers crossed


Today at the Nystagmus Network we have our fingers firmly crossed. Why? Because we want to say a big THANK YOU to all the lovely national lottery players who helped make our Parent Power project possible. Thanks to our National Lottery Community Fund grant we’re able to run a series of free workshops for parents … Continue reading Fingers crossed