Volunteer needed


Are you good at IT? The Nystagmus Network is looking for the right person to offer us some IT support. The skills, knowledge and experience we’re looking for include: Programming languages Common operating systems Software proficiency Web management Data collection The time commitment isn’t huge, just a couple of hours here and there, but your … Continue reading Volunteer needed

Raising nystagmus awareness in 2019


The Nystagmus Network works tirelessly to raise awareness of nystagmus, not only on Nystagmus Awareness Day but throughout the year. Why raise awareness? We firmly believe that the more people who know about nystagmus and understand its effects, the better life will be for the adults and children affected by the condition. New for 2019 We’ve revised … Continue reading Raising nystagmus awareness in 2019

Fancy a stroll through London?


At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital. Please join us. We’re doing … Continue reading Fancy a stroll through London?

Have you sent in your photo?


There’s still time to enter our Christmas 2018 photo competition. Entrants can be any age. They must have nystagmus themselves or be the close relative of someone who does. To enter the competition please submit 1 high resolution image only, which must be your own work. The subject matter is simply Christmas. The winning photograph … Continue reading Have you sent in your photo?

Who’s up for a challenge?


Push Yourself Further – 10 great events in 2019 New for 2019 – the Nystagmus Network has partnered up with Action Challenge to bring you 10 fundraising challenges. Ellie and Laura have already signed up. What’s stopping you?! Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing … Continue reading Who’s up for a challenge?

Considering the RNC?


If you’d like to find out what the Royal National College for the blind has to offer for visually impaired young people, why not go along to a forthcoming ‘have a go’ weekend? Free for young people aged 13 to 17 with a visual impairment Saturday 16 and Sunday 17 February 2019 ·         Try sports such … Continue reading Considering the RNC?

Manchester nystagmus network


The next meeting of our new North West regional group will take place on Saturday 26 January in Manchester. Nystagmus Network trustee, Marie Turnbull will once again be your host and this time she will be joined by our volunteer Education Advocate, Frances Lilley. We look forward to welcoming back the families and adults who … Continue reading Manchester nystagmus network