Are you good at IT? The Nystagmus Network is looking for the right person to offer us some IT support. The skills, knowledge and experience we’re looking for include: Programming languages Common operating systems Software proficiency Web management Data collection The time commitment isn’t huge, just a couple of hours here and there, but your … Continue reading Volunteer needed
Heather, Josh and Tim have already signed up to run the London Vitality 10k on Bank Holiday Monday, 27 May. Want to join Team Nystagmus Network? We still have FREE run places available for the right runners. Interested? Please contact us for details.
The Nystagmus Network works tirelessly to raise awareness of nystagmus, not only on Nystagmus Awareness Day but throughout the year. Why raise awareness? We firmly believe that the more people who know about nystagmus and understand its effects, the better life will be for the adults and children affected by the condition. New for 2019 We’ve revised … Continue reading Raising nystagmus awareness in 2019
There’s nothing quite like the feeling of belonging, to know that you’re part of a community and among friends, all working for the same goals as you. That’s why the Nystagmus Network is a membership organisation. The more people we represent who are affected by nystagmus, or have an interest in the condition, the better … Continue reading Are you a member?
At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital. Please join us. We’re doing … Continue reading Fancy a stroll through London?
There’s still time to enter our Christmas 2018 photo competition. Entrants can be any age. They must have nystagmus themselves or be the close relative of someone who does. To enter the competition please submit 1 high resolution image only, which must be your own work. The subject matter is simply Christmas. The winning photograph … Continue reading Have you sent in your photo?
The BBC are looking for adult research participants who are Partially Sighted screen reader users (JAWS, NVDA or Mac VoiceOver) and Partially Sighted screen magnifier users. You will need to be available on 31 January or 1 February. You will receive £90 plus travel costs. Email catharine.green@bbc.co.uk to find out more.
Push Yourself Further – 10 great events in 2019 New for 2019 – the Nystagmus Network has partnered up with Action Challenge to bring you 10 fundraising challenges. Ellie and Laura have already signed up. What’s stopping you?! Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing … Continue reading Who’s up for a challenge?
If you’d like to find out what the Royal National College for the blind has to offer for visually impaired young people, why not go along to a forthcoming ‘have a go’ weekend? Free for young people aged 13 to 17 with a visual impairment Saturday 16 and Sunday 17 February 2019 · Try sports such … Continue reading Considering the RNC?
The next meeting of our new North West regional group will take place on Saturday 26 January in Manchester. Nystagmus Network trustee, Marie Turnbull will once again be your host and this time she will be joined by our volunteer Education Advocate, Frances Lilley. We look forward to welcoming back the families and adults who … Continue reading Manchester nystagmus network
