Collaborative funding to tackle sight loss
Hear Dr Rubina Ahmed from Fight for sight and Sue from Nystagmus Network talking about their brand new jointly funded nystagmus research grant in this excerpt from RNIB Connect Radio. LISTEN NOW
Are you going to LOOKfest?
July 26-29 2019 Kentchurch, Herefordshire Fun for all the family! From toddlers to teens, to the truly ancient, there is something for everyone! Parent / Carer ticket: £55.00 Child ticket (3-18 yrs): £35.00 Under 2s go FREE! Welcome to LOOKfest! the first ever VI-accessible summer festival for families with a visually impaired parent or child. Designed … Continue reading Are you going to LOOKfest?
How amazing are you?
Don’t forget that, throughout June, in the run up to Nystagmus Awareness Day 2019, we’ll be sharing all your amazing nystagmus stories. So, if you’d like us to feature your success or achievement, or your child’s, or nominate someone you know, please send your story and photo to: info@nystagmusnet.org.
A nystagmus care pathway
The notes below are taken from an article recently published in the British and Irish Othoptic Journal, BIOJ. Arguments for the Adoption of a Nystagmus Care Pathway Authors: Christopher M Harris, Julie Owen, John Sanders In the UK, there are six specialist nystagmus centres with eye tracking facilities, but nystagmus is not a rare condition. … Continue reading A nystagmus care pathway
ANUK conference 2019
Conference 2019 Learn about aniridia and related conditions from each other, and professionals in medical and related fields. Find out how those affected by aniridia deal with it every day. Contribute your experiences, ideas or skills to help others. Expert presentations Dr Simon Hayhoe from Bath University Inclusive Technologies for VI people Dr Ngozi Oluonye from Great … Continue reading ANUK conference 2019
Merton info and family fun day
INFORMATION and FAMILY FUN DAY Venue: MertonVision, The Guardian Centre, 67 Clarendon Road, Colliers Wood, London, SW19 2DX Date: Saturday 29th June 2019 Time: 10.30am – 3.30pm Travel: Nearest Tube: Colliers Wood on the Northern Line Parking: There is a car park behind the Guardian Centre Hosted by Guide Dog’s Children and Young People’s Services … Continue reading Merton info and family fun day
Want to be part of a world record attempt?
On the 3 June 2019, Orthoptics (School of Health Science) at The University of Liverpool will be celebrating World Orthoptics Day by attempting to break the current world record for the “Largest Human Image of an Eye”. The current record is 2,394 participants, all standing in a formation that from above resembles a human eye. CLICK HERE to find out about how … Continue reading Want to be part of a world record attempt?
Call for applications
The call for the joint Nystagmus Network / Fight for Sight £250k award to undertake a three year nystagmus research project, is now open. Vivien Jones, chair of the Nystagmus Network’s research committee, said: “We are delighted to be joining Fight for Sight in funding a post-doctoral researcher for nystagmus. This means we will be … Continue reading Call for applications
Pizza in Paris
A report by John Sanders, former Nystagmus Network UK chairman and development manager, on the recent Open Day of the French Nystagmus Network Nanterre, Paris, France, Saturday, April 6, 2019 Guest speaker, Dr François Audren tells the 4th Association Mouvement Nystagmus conference early on that visual acuity (VA) is a poor measure of how people … Continue reading Pizza in Paris
Ben’s a true nystagmus hero
Ben is doing a ‘wobbly cycle ride’ this Saturday, 4 May. He’ll be riding 35 miles for his brother, who has nystagmus, to raise money for the Nystagmus Network and to achieve his Duke of Edinburgh award. Here’s what Ben says: “I am Ben and I’m 13 years old. I am doing this cycle ride … Continue reading Ben’s a true nystagmus hero