As ‘wobbly week’ draws to a close for another year we just wanted to thank everyone for making Nystagmus Awareness day 2019 such a success. Thank you to our fundraisers, … Continue reading Thank you – you are amazing
Category: Charity highlights
Trustees discuss Parent Power with Marsha
On Thursday 20 June, Nystagmus Awareness Day a group of Nystagmus Network trustees met with Marsha de Cordova MP in Parliament. Earlier that morning, Marsha had tweeted her own Nystagmus … Continue reading Trustees discuss Parent Power with Marsha
Mike’s wiggly walk
On Nystagmus Awareness Day we are proud and delighted to announce that our newest supporter, Mike plans to walk the length of New Zealand to help find a cure for … Continue reading Mike’s wiggly walk
Our wobbly week competition
It’s wobbly week! And it’s Nystagmus Awareness Day this Thursday, 20 June. We want to raise as much awareness of nystagmus as possible and make sure that everyone has a … Continue reading Our wobbly week competition
Parent Power – our new project, funded by the Community Fund
The Nystagmus Network is delighted to announce that we have been awarded funding by the Community Fund for a brand new project, called Parent Power. The aim of the project … Continue reading Parent Power – our new project, funded by the Community Fund
Collaborative funding to tackle sight loss
Hear Dr Rubina Ahmed from Fight for sight and Sue from Nystagmus Network talking about their brand new jointly funded nystagmus research grant in this excerpt from RNIB Connect Radio. … Continue reading Collaborative funding to tackle sight loss
How amazing are you?
Don’t forget that, throughout June, in the run up to Nystagmus Awareness Day 2019, we’ll be sharing all your amazing nystagmus stories. So, if you’d like us to feature your … Continue reading How amazing are you?
Our fabulous Baker boy!
Steve Baker, who’s Twitter handle is, appropriately, @fabbakerboy, will be running the London marathon this Sunday for nystagmus research at Moorfields. Not content with just one marathon, Steve, who has … Continue reading Our fabulous Baker boy!
Get well soon, Sam
Sadly Nystagmus Network trustee and London marathon runner, Sam Jones has been forced to pull out of Sunday’s run due to a knee injury. Sam was all geared up to … Continue reading Get well soon, Sam
Our biggest ever investment in nystagmus research
Thanks to the generosity of our members, fundraisers and supporters and our longstanding partnership with Fight for Sight, the UK’s leading eye research charity, the Nystagmus Network is delighted to … Continue reading Our biggest ever investment in nystagmus research