Information and Support – Page 5

Notes from the January AN/Oscillopsia Forum

With people joining us from both sides of the Atlantic, there was some very interesting discussion at the most recent Nystagmus Network forum for adults with Acquired Nystagmus and Oscillopsia. … Continue reading Notes from the January AN/Oscillopsia Forum

Notes from the January Parent Forum

The Nystagmus Network runs regular virtual get togethers for parents and carers on Zoom. Here’s Sue’s report on the January event, which focused on homeschooling. It was lovely to see … Continue reading Notes from the January Parent Forum

Marsha chats with delegates at a Nystagmus Network event.

Nystagmus Networking

With a most difficult year now thankfully behind us, the Nystagmus Network is here to support the nystagmus community in any way we can. Keeping you connected Virtual meet ups for … Continue reading Nystagmus Networking

Thank you, Nadine

Thanks to her book ‘Can I tell you about nystagmus?’, children and their parents feel better able to explain nystagmus to others. In 2020, with the country in lockdown and … Continue reading Thank you, Nadine

Thank you, Mervyn

Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who … Continue reading Thank you, Mervyn

A woman holds her head in her hands and appears o be in some discomfort.

Living with Acquired Nystagmus and Oscillopsia?

The Nystagmus Network runs a virtual support group where people living with Acquired Nystagmus and/or Oscillopsia chat together on email and on zoom to share their experiences and try to find answers together. … Continue reading Living with Acquired Nystagmus and Oscillopsia?

Thank you to National Lottery players

Thanks to the generosity of National Lottery players, the Nystagmus Network is in receipt of a further grant to support the work of the charity. This welcome additional funding is … Continue reading Thank you to National Lottery players

The banner of Ecclesiastical Insurance. There is a pile of 12 Christmas presents and the words 12 days of giving, please noimate us and help us win and Ecclesiastical.

Please nominate the Nystagmus Network

Please nominate the Nystagmus Network to win a £1,000 Christmas bonus as part of Ecclesiastical Insurance’s annual 12 days of giving festive campaign. Ecclesiastical will be awarding £1,000 to 12 … Continue reading Please nominate the Nystagmus Network

Chris Harris sits behind a microphone and prepares to speak.

Do you have Acquired Nystagmus or Oscillopsia?

We need you! The Nystagmus Network is supporting Professor Chris Harris and his team at the Royal Eye Hospital, Plymouth to investigate further Acquired Nystagmus and Oscillopsia. If you have … Continue reading Do you have Acquired Nystagmus or Oscillopsia?

A screenshot from the website of Geldards LLP and the words SEND with a COVID-19 pandemic

SEND within a COVID-19 pandemic

In his presentation for the Nystagmus Network virtual Open Day 2020, Kevin McManamon, Senior Associate, Educational Team, Geldards LLP sets out the current position of SEND support in schools in … Continue reading SEND within a COVID-19 pandemic