We are sorry to share the sad news that Richard Wilson, Chairman of the Nystagmus Network from 2011 to 2019, passed away over the Easter weekend. Richard’s contribution to the … Continue reading Thank you, Richard
Category: Posts
Could you help us with Donorfy?
Volunteer Donorfy CRM Developer and Trainer What will you be doing? What are we looking for? Experience and expertise in implementation of a CRM (preferably Donorfy) within a not for … Continue reading Could you help us with Donorfy?
#UKCharityWeek 2022
The Nystagmus Network is proud to be an official partner charity of #UKCharityWeek. Now in its 10th year, #UKCharityWeek is an annual celebration of charity and all about bringing people … Continue reading #UKCharityWeek 2022
Open Day to be virtual after all
After a three-year wait following the pandemic, an enormous amount of planning and anticipation, it is with huge disappointment that trustees and staff have decided to cancel this year’s in … Continue reading Open Day to be virtual after all
Nystagmus Network invests £17,000 in research
Nystagmus Network trustees donated £17,000 to the paediatric fund of the University of Southampton’s Gift of Sight appeal last December thanks to the generosity of our fundraisers and supporters. Someone … Continue reading Nystagmus Network invests £17,000 in research
Meet me in Southampton
This August the Nystagmus Network was finally able to meet with and celebrate the incredible achievements of a true nystagmus superhero, Mike Larcombe. From December 2019 and for a total … Continue reading Meet me in Southampton
Thank you, Harshal
The Nystagmus Network’s newest trustee, Dr Harshal Kubavat has a young child with nystagmus. Like many parents, he had never heard of nystagmus before. After supporting the charity’s work in … Continue reading Thank you, Harshal
People’s perceptions of nystagmus and the impact of Covid-19
In November 2020, the Nystagmus Network shared news of a new research survey into people’s perceptions of nystagmus. The results have now been published. The responses to the survey show … Continue reading People’s perceptions of nystagmus and the impact of Covid-19
Join us for the big lunch
As part of the long weekend 2-5 June, to celebrate the Platinum Jubilee of Her Majesty the Queen, the Nystagmus Network is inviting members of the nystagmus community to join … Continue reading Join us for the big lunch
What’s your nystagmus research question?
The Nystagmus Network has been investing in research since the 1990s. Nystagmus academics, clinicians and researchers in Cardiff, Leicester, London, Plymouth, Sheffield and Southampton continue to focus on causes, effects, … Continue reading What’s your nystagmus research question?