Trustees play an essential role in the running of the Nystagmus Network. Whilst it is not a role to be taken on lightly and may be demanding of time and … Continue reading Could you be a Nystagmus Network trustee?
Category: Posts
Can I tell you about nystagmus?
Can I tell you about Nystagmus? is a guide for friends, family and professionals by Nadine Neckles (illustrated By Vikas Upadhyay). Sue from the Nystagmus Network talks about Nadine’s book … Continue reading Can I tell you about nystagmus?
Boost it for June
WALK, JOG, or RUN Anywhere – Anytime… THROUGHOUT JUNE From 50 km up to 500 km… You choose Your challenge Sign Up Now… With relaxation of the restrictions on travel and exercise, June … Continue reading Boost it for June
Your nystagmus research questions answered – question 3
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered … Continue reading Your nystagmus research questions answered – question 3
Your nystagmus research questions answered
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered … Continue reading Your nystagmus research questions answered
Nystagmus Network staff under lockdown
Nystagmus Network staff team members, Sue, Sara and Debbie are all adjusting to the current pandemic and a slightly different way of doing things. Though they all usually work from … Continue reading Nystagmus Network staff under lockdown
Join our virtual quiz night
This Saturday at 7pm Thank you to everyone who took part in the very first Nystagmus Network virtual quiz night last week. There may have been a few technical hitches, … Continue reading Join our virtual quiz night
Have you been on a bear hunt yet?
A great way to make your time outdoors fun with the children is to go on a bear hunt. Inspired by the lovely Michael Rosen’s fabulous book “We’re going on … Continue reading Have you been on a bear hunt yet?
East Sussex Parent Carer Forum – get involved
Parent carer voices are essential to help shape the services they need for their children and young people. The East Sussex Parent Carer Forum would like you to get involved.
Fight for Sight survey on eye conditions and sight loss
Fight for Sight needs your help as part of a ground-breaking survey into the experience of living with sight loss or an eye condition. By taking part in the survey … Continue reading Fight for Sight survey on eye conditions and sight loss