In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both … Continue reading Nystagmus in lockdown
Tag: nystagmus
Nystagmus Awareness Day 20 June 20
Nystagmus Awareness Day – 20 June 2020 It’s national and international Nystagmus Awareness Day on Saturday 20 June 2020. We may all be staying at home this year, but we … Continue reading Nystagmus Awareness Day 20 June 20
Nystagmus is … a guide for adults
A fabulous new publication, Nystagmus is … a guide for adults, is now available FREE from our online shop. The booklet is inspired by the wonderful Roger (pictured), who first contacted us … Continue reading Nystagmus is … a guide for adults
A YouGov nystagmus awareness survey
The Nystagmus Network commissioned a YouGov survey in May 2020, ahead of Nystagmus Awareness Day on 20 June, to see how aware the UK population is of nystagmus. The survey … Continue reading A YouGov nystagmus awareness survey
The Nystagmus Network receives £8,000 from the National Lottery to increase our support services
The Nystagmus Network is delighted to have been awarded just over £8,000 in National Lottery funding to underpin its work supporting adults with nystagmus. The charity will use the funding … Continue reading The Nystagmus Network receives £8,000 from the National Lottery to increase our support services
Nystagmus Network launches webinar series for clinicians
Nystagmus Network launches online CET webinars for eye-care professionals The Nystagmus Network charity was founded in 1984 to support patients living with the condition. They currently have 500 members but … Continue reading Nystagmus Network launches webinar series for clinicians
Let’s go for an eye test!
Our next webinar is all about going to a high street optician’s when you have nystagmus. Tuesday 12 May at 3pm You have had an eye test … what now … Continue reading Let’s go for an eye test!
Sue’s still knitting!
From now until 26 May, this is Sue’s daily schedule: 45 minutes yoga 8 hours working at the Nystagmus Network 1 hour walking her dogs Then carry on with her … Continue reading Sue’s still knitting!
How amazing are you?
In the run up to Nystagmus Awareness Day on 20 June 2020, we are once again asking you to share your amazing nystagmus success stories. Not only do these stories … Continue reading How amazing are you?
Sue’s Two Point Six Challenge
Sunday 26 April 2020 was to have been the date of the London Marathon with runners raising £millions for UK charities. The Nystagmus Network’s runner, Adam, is still training to … Continue reading Sue’s Two Point Six Challenge