Nystagmus Network launches online CET webinars for eye-care professionals The Nystagmus Network charity was founded in 1984 to support patients living with the condition. They currently have 500 members but … Continue reading Nystagmus Network launches webinar series for clinicians
Our next webinar is all about going to a high street optician’s when you have nystagmus. Tuesday 12 May at 3pm You have had an eye test … what now … Continue reading Let’s go for an eye test!
From now until 26 May, this is Sue’s daily schedule: 45 minutes yoga 8 hours working at the Nystagmus Network 1 hour walking her dogs Then carry on with her … Continue reading Sue’s still knitting!
In the run up to Nystagmus Awareness Day on 20 June 2020, we are once again asking you to share your amazing nystagmus success stories. Not only do these stories … Continue reading How amazing are you?
Sunday 26 April 2020 was to have been the date of the London Marathon with runners raising £millions for UK charities. The Nystagmus Network’s runner, Adam, is still training to … Continue reading Sue’s Two Point Six Challenge
How are you getting on with shopping for food? What are your experiences of queues, social distancing, assistance available in store? Have you managed to secure online delivery slots? The … Continue reading Your food shopping experience
Make the most of your time outdoors (or inside!) with one of these fabulous fundraising challenges. choose your challenge sign yourself up set up your Justgiving page for sponsorship Choose … Continue reading Go hard and go straight home!
When my daughter was 6 weeks old a paediatrician at baby clinic told me she was blind. Just like that. No preamble. It was a devastating experience, a cruel message, … Continue reading 30 years of nystagmus research – what a difference it has made
Lots of you are asking us this question and some of you have received notification letters from the government. We asked for expert clinical advice and received the following statement: … Continue reading Does nystagmus or ocular albinism affect my immunity?
A guest post. A couple of years ago, I wrote a piece about being a parent with nystagmus of a child without. That child is now old enough to tell … Continue reading Julia’s musical adventures
