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Supporting people living with nystagmus

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Tag: nystagmus

3 woolly nystagmus mascots

Sold out!


Thank you to everyone who has ordered a woolly nystagmus mascot this year. We are now officially sold out. Together you have raised £360 and given new homes to 72 … Continue reading Sold out!

Posted on December 11, 2020December 17, 2020Author Sue RickettsCategories Charity highlights, FundraisingTags mascots, nystagmus, nystagmus network, Thank you
Mervyn smiles for the camera.

Thank you, Mervyn


Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who … Continue reading Thank you, Mervyn

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Information and Support, Living with nystagmus, Nystagmus heroes, research, Thank yousTags nystagmus, nystagmus network
Libby smiles at the camera.

Thank you, Libby


Inspired by her 2 younger sisters, who both have nystagmus, final year geography student, Libby chose to explore the experiences of young visually impaired adults in their local space and … Continue reading Thank you, Libby

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Nystagmus heroes, research, Thank yousTags nystagmus, nystagmus network
Julia and her young daughter smile for the camera. They are at the seaside and the child is holding a toy windmill.

Thank you, Julia


Living with the triple whammy of nystagmus, myopia and astigmatism, Julia is an accomplished musician. She also sings in choirs, which often happens in poorly lit churches. In her blog … Continue reading Thank you, Julia

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Living with nystagmus, Nystagmus heroes, Thank yousTags nystagmus, nystagmus network
Josh and his family smile for the camera.

Thank you, Josh


Josh can’t see rain – can you? Josh was born with nystagmus and ocular albinism, but he hasn’t let that hold him back. Josh has been a primary school teacher … Continue reading Thank you, Josh

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Living with nystagmus, Nystagmus heroes, Thank yousTags nystagmus, nystagmus network
Jaina smiles at the camera.

Thank you, Jaina


Jaina joined the Nystagmus Network team in August 2020 as an intern, spending some time to gain experience of working in a small charity. Jaina was hugely helpful in the … Continue reading Thank you, Jaina

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Nystagmus heroes, Thank yousTags nystagmus, nystagmus network
A banner at a fundraising stall.

Thank you, Emma


For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. … Continue reading Thank you, Emma

Posted on December 11, 2020December 11, 2020Author Sue RickettsCategories Fundraising, Thank yousTags nystagmus, nystagmus heroes, nystagmus network, Thank you
a Christmas bauble

Digital Nystagmus Network Christmas cards


Bring a little joy to far away friends and family this festive season with a Nystagmus Network digital Christmas card. 6 designs to choose from. Digital Christmas cards here

Posted on December 4, 2020December 4, 2020Author Sue RickettsCategories Charity highlights, FundraisingTags Christmas cards, digital, nystagmus, nystagmus network
Claire and her young son smile for the camera

Thank you, Claire


Both Claire and her young son, Zac have nystagmus. In 2019 Claire decided she was going to do a sky dive for the Nystagmus Network. Postponements because of the weather … Continue reading Thank you, Claire

Posted on December 2, 2020December 2, 2020Author Sue RickettsCategories Fundraising, Nystagmus heroes, Thank yousTags #GiveBack2020, nystagmus, nystagmus network, sky dives
The logo of Gene Vision

Gene Vision launches


Gene Vision launched to support those diagnosed with genetic eye diseases London, 01 December 2020 A new website, Gene Vision, has launched today, developed by Professor Mariya Moosajee and Dr … Continue reading Gene Vision launches

Posted on December 1, 2020December 1, 2020Author Sue RickettsCategories Charity highlights, NewsTags Gene Vision, genetic eye disease, genetics, Mariya Moosajee, nystagmus, nystagmus network

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