On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs … Continue reading Nystagmus in the open and the Big Blind Walk
Tag: nystagmus
Nystagmus Awareness Day – for clinics
Please help us to promote national and international Nystagmus Awareness Day, on Wednesday 20 June, in clinics and hospitals all over the UK and the world. We have free to … Continue reading Nystagmus Awareness Day – for clinics
Nystagmus Awareness Day – for schools
Schools can take part in Nystagmus Awareness Day, especially if there is a pupil who has nystagmus. Talking about nystagmus, celebrating ‘nystagmus in the open‘ will help us raise awareness … Continue reading Nystagmus Awareness Day – for schools
Nystagmus Awareness Day – for sports clubs
Calling all sports and athletics clubs – we want you to join us for ‘nystagmus in the open‘ on national and international Nystagmus Awareness Day on Wednesday 20 June. We … Continue reading Nystagmus Awareness Day – for sports clubs
Nystagmus Awareness Day – for snow men!
Whilst we are all looking forward to the very first Nystagmus Awareness Day in the summer – on Wednesday 20 June – for those of you who miss the old … Continue reading Nystagmus Awareness Day – for snow men!
Nystagmus in the garden
To mark the end of Wobbly Week 2018, Sue will be opening her tiny courtyard garden in Lincolnshire to the public for ‘nystagmus in the open‘. There will be tea and … Continue reading Nystagmus in the garden
Do you know your ECLO?
If you or someone in your family has nystagmus, then make sure you meet your ECLO (Eye Clinic Liaison Officer). You can ask for them the next time you visit … Continue reading Do you know your ECLO?
Nystagmus and Quality of Life
A research paper is republished this month into the quality of life of people living with nystagmus. Professor Irene Gottlob and Dr Rebecca McLean from the University of Leicester shared … Continue reading Nystagmus and Quality of Life
Marsha de Cordova MP – our Open Day keynote speaker
We are delighted to announce that we shall be joined on Open Day this year by Shadow Minister for Disabilities, Marsha de Cordova. Marsha has nystagmus and is severely sight … Continue reading Marsha de Cordova MP – our Open Day keynote speaker
Thursday is research news day on Facebook
Every Thursday on our Facebook page we publish the latest news on nystagmus research or publish details of new nystagmus trials that you can take part in. We are currently … Continue reading Thursday is research news day on Facebook