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Tag: nystagmus

The abseil is this weekend!


This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal … Continue reading The abseil is this weekend!

Posted on September 20, 2018Author Sue RickettsCategories Charity highlights, Fundraising, researchTags abseil, Moorfields Eye Hospital, nystagmus, research, University College London

Don’t forget us, please!


As national ‘Remember a Charity Week’ begins, the Nystagmus Network would like to make a plea to all our members and supporters to consider remembering us in your wills. We … Continue reading Don’t forget us, please!

Posted on September 10, 2018Author Sue RickettsCategories Legacies and gifts in willsTags gifts in wills, legacies, nystagmus, nystagmus research

They did it!


We’ve just heard that James and his little brother, Thomas, have successfully completed their summer fundraising challenge to raise a phenomenal £677 for two charities. James (8) and Thomas (5) … Continue reading They did it!

Posted on August 31, 2018Author Sue RickettsCategories FundraisingTags chromosome 18q-, nystagmus

Glen’s taking the abseil challenge. Could you?


Glen is a member of the Nystagmus Network and a true friend of the charity. We were privileged to meet him last year when he led a workshop at Open … Continue reading Glen’s taking the abseil challenge. Could you?

Posted on August 17, 2018Author Sue RickettsCategories FundraisingTags abseil, fundraising, Moorfields Eye Hospital, nystagmus, research

Claire’s taking the leap for nystagmus. Want to join her?


Introducing Claire, the next member of Team Nystagmus Network Abseil. Claire is a keen rock climber, so abseiling her way down the ArcelorMittal Orbit is going to be a walk … Continue reading Claire’s taking the leap for nystagmus. Want to join her?

Posted on August 17, 2018Author Sue RickettsCategories FundraisingTags abseil, fundraising, Moorfields Eye Hospital, nystagmus, research

An inspirational student


Ella is a third year student at Nottingham Trent University. She just happens to have nystagmus. She is full of advice and inspiration for other young people with nystagmus. Hear … Continue reading An inspirational student

Posted on August 8, 2018Author Sue RickettsCategories Education, Information and Support, Living with nystagmusTags nystagmus, RNIB Connect Radio, university

Seeing Beyond The Eyes


The Nystagmus Network is pleased to share this guest post from our friends at Visualise Training and Consultancy. The new guide ‘Seeing Beyond The Eyes’ includes details of the charity’s … Continue reading Seeing Beyond The Eyes

Posted on August 2, 2018March 30, 2023Author Sue RickettsCategories Guest posts, Information and Support, PostsTags awareness, clinicians, information, living with nystagmus, nystagmus, support, Visualise Training and Consultancy

Twins appeal!


Here at the Nystagmus Network we often hear from people who are twins or parents of twins. Sometimes both twins have nystagmus, but sometimes only one of them does. This … Continue reading Twins appeal!

Posted on August 1, 2018Author Sue RickettsCategories researchTags identical twins, nystagmus

Visual impairment and mental health


Children aged between 8 and 11 years old who live with a visual impairment are three times more likely to develop a mental health problem than children with no visual … Continue reading Visual impairment and mental health

Posted on July 26, 2018Author Sue RickettsCategories Information and Support, Living with nystagmus, Social and emotional aspectsTags children and young people, mental health, nystagmus, visual impairment

James and Thomas’s Summer Challenge


James and his little brother, Thomas, are taking on a very special challenge this summer to raise money for two charities very close to the family’s heart. James (8) and … Continue reading James and Thomas’s Summer Challenge

Posted on July 25, 2018Author Sue RickettsCategories FundraisingTags chromosome 18q-, fundraising, nystagmus, nystagmus network

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