Ella is a third year student at Nottingham Trent University. She just happens to have nystagmus. She is full of advice and inspiration for other young people with nystagmus. Hear … Continue reading An inspirational student
Tag: nystagmus
Seeing Beyond The Eyes
The Nystagmus Network is pleased to share this guest post from our friends at Visualise Training and Consultancy. The new guide ‘Seeing Beyond The Eyes’ includes details of the charity’s … Continue reading Seeing Beyond The Eyes
Twins appeal!
Here at the Nystagmus Network we often hear from people who are twins or parents of twins. Sometimes both twins have nystagmus, but sometimes only one of them does. This … Continue reading Twins appeal!
Visual impairment and mental health
Children aged between 8 and 11 years old who live with a visual impairment are three times more likely to develop a mental health problem than children with no visual … Continue reading Visual impairment and mental health
James and Thomas’s Summer Challenge
James and his little brother, Thomas, are taking on a very special challenge this summer to raise money for two charities very close to the family’s heart. James (8) and … Continue reading James and Thomas’s Summer Challenge
Celebrating National Sunglasses Day!
As photophobia is a frequent accompaniment to nystagmus and ocular albinism, we’re happy to join in a day of celebrating sunglasses and raising awareness of the importance of protecting your … Continue reading Celebrating National Sunglasses Day!
How amazing is Bradley
We couldn’t resist one more ‘amazing’ nystagmus success story. Not everyone with nystagmus can drive, but Bradley has turned driving into his philosophy on life. My name is Bradley. I’ve … Continue reading How amazing is Bradley
Charity trustees meet Marsha
On the Tuesday of ‘wobbly week’ 2018, a group of trustees were invited to Parliament to meet with Marsha De Cordova MP, Shadow Minister for Disabilities. Marsha has nystagmus herself … Continue reading Charity trustees meet Marsha
Sue shares her personal nystagmus story
On Nystagmus Awareness Day 2018, the Nystagmus Network’s Information and Development Manager, Sue, shared her nystagmus story and explained why it’s so important to continue to raise awareness of nystagmus. … Continue reading Sue shares her personal nystagmus story
How amazing is Sara?
A guest post from Sara’s Mum … This is my daughter Sara. She’s 17 now and born with albinism and nystagmus. Her sight is badly affected, but nothing stops her!!! … Continue reading How amazing is Sara?