When your child becomes a parent your relationship with them moves into an exciting new phase. Alongside that, you have an entirely new little person to get to know. It’s … Continue reading Our Facebook group for grandparents
Category: Information and Support
Marsha’s message for Nystagmus Awareness Day 2024
Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s … Continue reading Marsha’s message for Nystagmus Awareness Day 2024
Understanding your experiences of nystagmus
You are invited to participate in a research study titled “Understanding the Experiences of Individuals with Eye Movement Disorders.” This study aims to explore the lived experiences, challenges, and perspectives … Continue reading Understanding your experiences of nystagmus
Nystagmus and the early years
The Nystagmus Network is proud to launch a new guide to nystagmus and the early years. Written for new parents and carers where a baby is newly diagnosed with nystagmus, … Continue reading Nystagmus and the early years
Stress busting workshop for parents and carers
Parents’ online get together, November 29 2023 7-9pm – guest speaker from CONTACT* At our next online get together for parents and carers we will be joined by a speaker … Continue reading Stress busting workshop for parents and carers
Please nominate us to win a £1,000 donation
Please take a moment to nominate the Nystagmus Network for the chance to win a £1,000 donation. That’s enough to pay for a year’s supply of nystagmus information leaflets for … Continue reading Please nominate us to win a £1,000 donation
The big ‘nystagmus’ meet up – Manchester
Saturday 23 September, 10am to 3pm You are warmly invited to join Nystagmus Network staff and trustees for our next in person event – the big nystagmus meet up, Manchester. … Continue reading The big ‘nystagmus’ meet up – Manchester
Sue at VIEW
Nystagmus Network’s Sue Ricketts travelled to Birmingham last week for the annual conference of VIEW, the national body representing Qualified Teachers of Visually Impaired children and young people (QTVIs). Delegates … Continue reading Sue at VIEW
Parents and carers get together
Parents and carers of children and young people with nystagmus are warmly invited to our first Parents’ Get Together of the year. We are delighted to share that Becky Hyams … Continue reading Parents and carers get together
A winter warmer for darker days
We’re taking part in the #TheGreatGetTogether – please join us We are hosting two online get togethers this month. For people living with Acquired Nystagmus our online get together takes … Continue reading A winter warmer for darker days