This Nystagmus Awareness Day we’re asking you to share your story. This is James’s story. You can share your story here Until my son Sullivan was born, we as a … Continue reading James’s nystagmus story

This Nystagmus Awareness Day we’re asking you to share your story. This is James’s story. You can share your story here Until my son Sullivan was born, we as a … Continue reading James’s nystagmus story
Nystagmus Network’s Sue Ricketts travelled to Birmingham last week for the annual conference of VIEW, the national body representing Qualified Teachers of Visually Impaired children and young people (QTVIs). Delegates … Continue reading Sue at VIEW
Having nystagmus hasn’t stopped Leicester’s Khalil Musani from forging a career in optics and helping others look after their eyes When Khalil secured a Saturday job at a Leicester opticians … Continue reading Leicester optician puts nystagmus in Focus
Impact of the COVID-19 pandemic on individuals with nystagmusand an exploration of public assumptions about the condition: an electronic questionnaire study The study explored the self-reported impact of the COVID-19 … Continue reading Perceptions of nystagmus and the impact of the Covid-19 pandemic
The Nystagmus Network is a little charity with very big ideas. Do you want to be part of our exciting journey? If you have the skills and time to give … Continue reading Volunteer for us!
A guest post After my first proper job following university, I decided to ‘come out’ about my disability and support needs. I was worried this might make me stand out … Continue reading Nystagmus awareness at work
In 2021 the Nystagmus Network supported 591 people to come to terms with nystagmus, to find the support and information they needed. We’re even busier in 2022, as more and … Continue reading It’s so nice to be appreciated
Whilst the trustees oversee strategy and guide the direction of the charity, overall management and day-to-day operations are in the capable hands of our small dedicated staff team. Hanni is … Continue reading Hanni’s nystagmus story
The Nystagmus Network’s newest trustee, Dr Harshal Kubavat has a young child with nystagmus. Like many parents, he had never heard of nystagmus before. After supporting the charity’s work in … Continue reading Thank you, Harshal
Vivien Jones is the Founder and Honorary President of the Nystagmus Network. She started the charity in 1984 to support parents like her. Her son, Sam had recently been diagnosed … Continue reading Thank you, Vivien