nystagmus network – Page 12 – Nystagmus Network

Thank you, Harshal

The Nystagmus Network’s newest trustee, Dr Harshal Kubavat has a young child with nystagmus. Like many parents, he had never heard of nystagmus before. After supporting the charity’s work in … Continue reading Thank you, Harshal

Thank you, Vivien

Vivien Jones is the Founder and Honorary President of the Nystagmus Network. She started the charity in 1984 to support parents like her. Her son, Sam had recently been diagnosed … Continue reading Thank you, Vivien

Charlie and his fellow team mmebers wearing their Nystagmus Network sports tops.

Charlie’s Nystagmus Network football team

Charlie loves football. He also loves his team. When they were short of money to pay for the under 7s new kit, Charlie had the brilliant idea of asking the … Continue reading Charlie’s Nystagmus Network football team

Tim Hands – living with nystagmus

Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story or … Continue reading Tim Hands – living with nystagmus

a blurred image of busy outdoor scene with lots of people milling around

Living with nystagmus through a global pandemic

Learning to live with nystagmus, finding our way in the world and developing independence creates a range of challenges as we move through the stages of life. Whether we’re talking … Continue reading Living with nystagmus through a global pandemic

Child wearing a Nystagmus Network T shirt and holding a mascot.

What shapes quality of life of visually impaired children and young people?

Guest post by Ana Semrov, UCL GOS Institute of Child Health We are looking for volunteers to take part in our study called: What shapes quality of life of visually … Continue reading What shapes quality of life of visually impaired children and young people?

A young child sitting at a table drawing.

Nystagmus isn’t catching – tell your friends!

The little girl in the picture has nystagmus. She is enjoying some drawing at a Nystagmus Network event some years ago. At the time she had just started school and … Continue reading Nystagmus isn’t catching – tell your friends!

Trustee vacancies

Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus community in all … Continue reading Trustee vacancies

People’s perceptions of nystagmus and the impact of Covid-19

In November 2020, the Nystagmus Network shared news of a new research survey into people’s perceptions of nystagmus. The results have now been published. The responses to the survey show … Continue reading People’s perceptions of nystagmus and the impact of Covid-19

Joel’s nystagmus story

For Nystagmus Awareness Day 2022 we are delighted to share Joel’s nystagmus story, in his own words: What is nystagmus? Not many people know what nystagmus is. The best way … Continue reading Joel’s nystagmus story