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Who’s up for a challenge?

Push Yourself Further – 10 great events in 2019

New for 2019 – the Nystagmus Network has partnered up with Action Challenge to bring you 10 fundraising challenges.

Ellie and Laura have already signed up. What’s stopping you?!

Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing adventures? Or even a marathon runner wanting to ‘up’ your distance? Whether it’s along magnificent coastal scenery, or in stunning open countryside, there’s an Ultra Challenge for you.

Walk, Jog or Run at YOUR pace on the Ultra Challenge Series event of your choice. Join 20,000 others in 2019 of all ages and experience for an unforgettable Challenge. It will be rewarding, fun, and absolutely achievable with your resolve and determination alongside first class support.

Push yourself further – 100km Full Challenge, with Half and Quarter options also available.

CHOOSE YOUR CHALLENGE:

Isle of Wight Challenge – 4/5 May 2019 Around the coastal path…

London 2 Brighton Challenge – 25/26 May 2019 Iconic route from Capital to Coast…

Jurassic Coast Challenge – 8/9 June 2019 The UK’s best coastline…

Cotswold Way Challenge – 29/30 June 2019 Tough rolling hills and stunning viewpoints…

Peak District Challenge – 13/14 July 2019 A looped route to and from our basecamp in Bakewell…

Chiltern Challenge – 27/28 July Take on the Ridgeway through the Chiltern hills …

South Coast Challenge – 31 Aug/1 Sept 2019 Seven Sisters and South Downs…

Thames Path Challenge – 7/8 Sept 2019 Take on the historic towpath… PLUS – Thames Bridges Trek 25km

The North Downs Challenge – 28 September Festival style season-finisher…

You’ll get full support and hospitality all the way, leaving you to focus on your challenge!

  • Rest stops – free food
  • Half or 1/4 Challenge options
  • 100km Challenge · Join as Individual or Team
  • Walk it, Jog it, or Run it · Pre-event training support + app
  • Camping options available
  • 2 Day Full ‘Daylight’ option
  • Run or Jog – set a New Goal!
  • Walk at Your Pace – 24 hours+
  • Medal, T shirt, glass of bubbly!
  • Medics, massage, and pace walkers
  • ALL meals/ food and drink included!
  • It’s Your Challenge – Your Way

www.ultrachallenge.com [email protected]

CHOOSE YOUR FUNDRAISING OPTION:

Charity Sponsorship – pay a small registration fee and do lots of fundraising!

  • Full Challenge – £15 reg fee + £595 in fundraising
  • Half Challenge – £10 reg fee + £395 in fundraising
  • Quarter Challenge – £5 reg fee + £245 in fundraising

Mixed Funding – pay a higher contribution to the cost of your place and fundraise to a more achievable target.

  • Full Challenge – £99 reg fee + £299 in fundraising
  • Half Challenge – £64.50 reg fee + £199 in fundraising
  • Quarter Challenge – £39.50 reg fee + £119 in fundraising

Find out more about the route, support, hospitality and choose your Challenge at www.ultrachallenge.com

Considering the RNC?

If you’d like to find out what the Royal National College for the blind has to offer for visually impaired young people, why not go along to a forthcoming ‘have a go’ weekend?

Free for young people aged 13 to 17 with a visual impairment

Saturday 16 and Sunday 17 February 2019

·         Try sports such as Goalball and VI football

·         Art, music and drama

·         Bowling, golf and lots more

The weekend at RNC is free for young people aged 13 to 17 with a visual impairment to attend. Free accommodation is also provided for an accompanying parent/guardian, and siblings are welcome too!

Please visit the RNC website for more information 

Manchester nystagmus network

The next meeting of our new North West regional group will take place on Saturday 26 January in Manchester. Nystagmus Network trustee, Marie Turnbull will once again be your host and this time she will be joined by our volunteer Education Advocate, Frances Lilley.

We look forward to welcoming back the families and adults who came along to the first meeting in November.

New members are very welcome. For details, please contact us today.

Guest post: Audio described tours at Tate

Dear Friends,

This is a message from Marcus at Tate in which I would like to wish you a very happy new year, and to tell you about Tate’s Audio Description tours for Blind and Partially Sighted visitors in January and February.

Our first tour of the year is at Tate Modern, and takes place on Sunday 20th January 2019. It is a tour and a workshop on German weaver Anni Albers and there are only 14 places available so if you would like to attend please reply via email or telephone me and I will book you a place. The event is led by an artist who investigates how weaving and electrical wiring are related, and together we will weave sonic wire mats which respond to touch. The event is in two parts: an audio description tour led by Dick Thomas in the morning followed by lunch then a workshop in the afternoon. The workshop will be for a mix of sighted and blind people and will be supported with no previous experience necessary at all. Details here.

At Tate Britain on Monday 21st January 2019 at 11.00am we have a tour of Figure Totem Beast, the sculpture exhibition in the Tate Britain Duveen Halls. As well as describing these sculptures from the 1950s we will be able to touch them using gloves provided. Please meet as usual in the Manton Studio from 10.30 for refreshments. Details here.h

At Tate Britain on Monday 18th February 2019 at 11.00am we will be describing the totally new Art Now display by Jesse Darling. Jesse works between London and Berlin and creates sculptures which look at the link between art, health, disability, Batman and St Jerome and the Lion. Meeting point is again at the Manton Studio for refreshments before the tour. Details here.

More news about our exciting Millbank Mondays Audio Description tours coming up very soon

Your friend at Tate

Marcus

Wobbly Eyes in German

The Nystagmus Network UK sends huge congratulations to Hanna and her fellow trustees for the successful launch, at the end of 2018, of the German Nystagmus Netzwerk.

Our two organisations are working closely together to ensure that information and support is available for German speakers everywhere, affected by nystagmus.

To this end, today we celebrate the publication of ”Wackelige Augen”, the German translation of our very own booklet for children, Wobbly Eyes.

Hanna came along to our Open Day in September 2018. You can read her report, here.

To contact the German Nystagmus Netzwerk, email them here or find them on Facebook.

Nystagmus Network members hold up their voting cards.

Have you got our new number?

The registered charity number for the Nystagmus Network has changed. Our new number is 1180450. This marks our successful transition from humble charity to a Charitable Incorporated Organisation, as voted for by our members at our AGM in September. Only our number has changed. We remain a membership organisation serving the needs of the nystagmus community, providing support and information, raising awareness and funding research.

Contact details:

Email: [email protected]

Web: www.nystagmusnetwork.org

Facebook: NystagmusNetwork

Twitter: @NystagmusUK