Thanks to Paul Bowry and his family, the Nystagmus Network will be enjoying our first ever fundraising Car Boot Sale on Tuesday 18 September. Paul has been running boot fairs … Continue reading Another Nystagmus Network first!
Author: Sue Ricketts
#notyourusualnightout
Here’s a fundraising opportunity with a difference! You can choose to cycle a 50k or 100k route around London, Bristol, Glasgow or Liverpool AT NIGHT with Nightrider 2019. Provided you … Continue reading #notyourusualnightout
Nystagmus acquired after a stroke?
Professor Fiona Rowe from the Institute of Psychology, Health and Society at the University of Liverpool is currently seeking patients to take part in an online anonymous questionnaire about eye … Continue reading Nystagmus acquired after a stroke?
Don’t forget us, please!
As national ‘Remember a Charity Week’ begins, the Nystagmus Network would like to make a plea to all our members and supporters to consider remembering us in your wills. We … Continue reading Don’t forget us, please!
Matt is joining the abseil
Matthew Dawson will be abseiling down the UK’s allest piece of public art on 23 September to raise much needed funding for nystagmus research at Moorfields and UCL. He is … Continue reading Matt is joining the abseil
Guest post: Harry’s back at school!
Over the summer holidays we followed Harry’s progress as he underwent the Anderson Kestenbaum procedure to address the head turn associated with his nullpoint. Today we hear from Harry’s Dad, … Continue reading Guest post: Harry’s back at school!
Peter and Neil seal the deal!
Nystagmus Network trustee and research committee member, Peter Greenwood, and Fight for Sight’s Research Manager, Neil Meemaduma, met at Fight for Sight’s offices in London last week to progress plans … Continue reading Peter and Neil seal the deal!
QAC information days for professionals
Two ‘Information Days for Professionals’ events at Queen Alexandra College (QAC) may be of interest to Connexions and Careers Advisors, DEA’s, Work Coaches, Employment Advisors and Social Workers, Teachers and Learning Support Assistants, SENCOs, Sensory … Continue reading QAC information days for professionals
Roselle is coming to Open Day
Because there is such a close link between albinism and nystagmus, the Nystagmus Network works closely with Albinism Fellowship UK. Chair of AFUK, Roselle Potts, will be joining us this … Continue reading Roselle is coming to Open Day