Nystagmus Awareness


Why it’s so important to us to celebrate Nystagmus Awareness Day

Here at the Nystagmus Network we raise awareness of the condition every single day of the year, because we believe that the more people who know about it the better. It means that adults and children who have nystagmus will get the help, support and services they need in education, employment, health, mobility and leisure and will enjoy a better quality of life.

Holding a national and international Nystagmus Awareness Day serves as a reminder to everyone that we are here and our voices need to be heard. Every time you take part in an event or tell someone what you’re doing and why, that’s one more person who understands what nystagmus is.

Nystagmus Awareness Day is an opportunity to celebrate and show the world what we can do.

Every pound you raise or donate helps the Nystagmus Network support our research teams across the UK to investigate this hugely complex condition, to find better diagnosis, treatments and continue to work towards prevention and cure.

Please take part in Nystagmus Awareness Day on 20 June every year

Here’s why we do it, in the words of one of our Facebook followers:

“I think it’s great that people are now being more aware of this eye condition and its effects on people’s lives! Though, as a 73 year old, future developments may come too late for me I feel that if younger people can receive meaningful help and don’t have to suffer the stigma and suffering and embarrassment that I went through it would be great! Bless all those working towards enlightenment and treatment of this life changing condition.”

Thank you for your support